It's been really nice finding out that underneath all the layers of sickness and funk I'm still there and I'm still me. As my energy returns I'm discovering just how deeply this illness has effected my entire life. I hadn't fully realized that it permeated every single moment of my life. I had grown so accustomed to lyme "normal" that I didn't realize I was so tired I was moving though space and every moment of my life in a way that wasn't fully authentic. As my symptoms lift I find, for example, that I can suddenly climb stairs without effort, in fact I can bounce up them again. My week little voice has got it's uumph and confidence back. I'm feeling creative and I'm up and moving around most of the day. I even went swimming and to a festival! It's been really nice to discover myself shinning through as the fog begins to lift more then it has in years. When it happens I sometimes think to myself, "Oh yeah, here I am and check me out, I'm freaking awesome!" It's a really, really good feeling.
SO...I had an appointment with my doctor last night and we retested all of my issues and my supplements. The results were surprising. Both the doctor and I we expecting improvements in both how I feel and in my numbers, but we had no idea how good it would be.
Remember that 1= really bad problem 3= active and needs work 5= barely detectable 0= not present
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.
Test Dec '11 1/12 4/12 5/12 7/5
Lyme 4 4 2 1 0 (we triple checked)
Babesia 3 2 2 3 5
Bartonella 3 2 2 3 0
Parasites 0 1 5 0 0
Viruses 4 3 3 4 4
Mycoplasma 4 4 4 4 5
Yeast/mold/fungi 3 3 4 4 3
Bacteria 3 2 3 4 2
Neurotoxins 4 4 4 3
Metals 4 4 4 3
Interpretation: WAAAAAAHOOOOO!!!!!!!!!!!! (happy dance)
- This is the first time I have had 3 zeros!!!!
- parasite free for two months in a row!
- NO more bartonella
- NO more Lyme (fingers crossed)
- Almost rid of mycoplasma AND babesia
After starting the Bicillin I started feeling better and better until about a week ago when I started to have some symptoms creep back. It looks like taking the Bicillin for 5 weeks did a little number on my tummy and now I've got an increase in yeast and gut bacteria and toxins. These things are to be expected and are likely the cause of my remaining symptoms. It's a tad disappointing to feel funky after feeling so fantastic for several weeks, but at least I know for sure that we are making progress and that I'm in the home stretch right now.
So as of now my doctor says we can't say that I'm cured because there is a chance that he can't detect the Lyme because it's gone into a dormant cyst form, but he said we can say that at least for yesterday I didn't have Lyme!!! He's guessing that as we're making progress and peeling off the layers of illness my body will heal and my immune system will get stronger and things will continue to progress faster and faster (double wahoo and one more happy dance!!!!!!). He's estimating that I'll be better or almost totally better in 2-3 months!!!!!!! No one has ever said that before. I have always been told a year - year and a half for the last 4 years. Things are getting really exciting around here.
What surprises me the most about this great news is how fast it happened. I've been sick for so long and I feel like I've tried everything. The spring was really rough for me, I was twitching so bad and for sooooo long that I was beginning to think I might just have to accept that life was as good as it was going to get. I never expected that 5 shots in the ass would be enough to cause such a dramatic improvement, let alone a possible remission of Lyme. It just blows my mind that one day I can be sick as all get out and then just weeks later feel better then I have in years. It really is amazing.
For now, we've adjusted my treatment protocol. It's focused on the last bit of babesia, yeast, toxins, and bacteria in my gut. It's the smallest protocol I've had since I started treatment in 2008. I'll do another post with the details very soon. I have to be extra careful with my diet, so no more gluten free cookies for a while. I'm really excited to find out what life will be like after the rest of these nagging symptoms lift and are gone for good.
Keep on keeping on!
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