tag:blogger.com,1999:blog-60405184769114929292024-03-04T23:06:54.440-08:00Becoming a ButterflyI'm using my experience with Lyme Disease to transform myself.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.comBlogger109125tag:blogger.com,1999:blog-6040518476911492929.post-62769603687532894782014-03-20T18:16:00.001-07:002014-03-20T18:17:04.704-07:00New Protocol for Treating Fluoroquinolone Toxicity, MTHFR, and Gut IssuesI just got back from a visit with the Dr. in Santa Cruz. It sure is a long drive from Chico, but well worth it. He muscles tests my protocol for me to insure that I can tolerate everything I take and it's going to be effective. Erik and I have also been <a href="http://selfhealth.cc/muscletesting.htm" target="_blank">muscle testing</a> ourselves at home and it is making a big difference because we can mirco tune our protocols in the weeks between visits. This was the first time that I went in for a visit and had almost nothing removed from my protocol. I think this is because I am testing at home and triple checking during my ND appointments using a <a href="http://www.zyto.com/technology.html" target="_blank">Zyto</a>.<br />
<br />
The following my current protocol. Please keep in mind that this is designed specifically for me to address my specific needs at this exact moment. I do not think that there is any one protocol out there that will work for a large section of the population. Everyone needs one created just for them. Given that, I share mine here because I get asked often and because it might give you some ideas of things to ask your practitioner about.<br />
<br />
Happy Healing!<br />
<br />
UPON WAKING<br />
1- <a href="http://yhst-129545147220636.stores.yahoo.net/dr-ohhira39s-probiotic-12-plus-2-boxes-of-63912260.html" target="_blank">Dr. Ohhirra's Probiotic</a><br />
1- <a href="http://www.pureformulas.com/cytozymead-180-tablets-by-biotics-research.html?CAPCID=17607473696&cadevice=c&gclid=CJO4u_azor0CFRBffgodXEwAvw&CA_6C15C=1666651670#sthash.zUNNSOHu.dpbs" target="_blank">Cytoyme-AD</a><br />
1- <a href="http://www.pureformulas.com/ortho-biotic-60-capsules-by-ortho-molecular-products.html?CAPCID=36864421496&cadevice=c&gclid=CIKK6oa0or0CFcyTfgody1kAIw&CA_6C15C=1019304305#sthash.9ubgYHjx.dpbs" target="_blank">Ortho Molecular Products Ortho Biotic </a><br />
<br />
BREAKFAST<br />
1- <a href="http://www.drugstore.com/nordic-naturals-omega-3-1000mg-soft-gels-lemon/qxp340708?catid=183249" target="_blank">Nordic Naturals - Omega -3</a><br />
2- <a href="http://www.pureformulas.com/epo-500-mg-250-softgel-capsules-by-pure-encapsulations.html#sthash.UCB29Xdu.dpbs" target="_blank">Pure Encapsulations Evening Primrose Oil EPO</a><br />
1- <a href="http://www.drugstore.com/nordic-naturals-childrens-dha-250mg-chewable-soft-gels-strawberry/qxp340695?catid=183248" target="_blank">Nordic Naturals Children's DHA</a><br />
1- <a href="http://www.pureformulas.com/bcomplex-plus-120-vegetable-capsules-by-pure-encapsulations.html#sthash.r01aLb2x.dpbs" target="_blank">Pure Encapsulations B-Complex Plus</a><br />
1- <a href="http://www.pureformulas.com/ultra-bcomplex-with-pqq-60-vegetable-capsules-by-pure-encapsulations.html#sthash.j1gP9qlD.dpbs" target="_blank">Pure Encapsulations B-Complex w/PQQ</a><br />
1- <a href="http://www.pureformulas.com/vitamin-d-supreme-180-capsules-by-designs-for-health.html#sthash.m0PrmmL7.dpbs" target="_blank">Designs For Life Vitamin D Supreme w/ K1 & K2</a><br />
2- <a href="http://www.wellnessinformationservices.com/store/superfoods/algazim/" target="_blank">Daily Algazim</a><br />
1- <a href="http://www.drvita.com/product/organic-india-ashwagandha-90-vegetarian-capsules/7922?gclid=COyB0a62or0CFYeUfgodK3gAKw" target="_blank">Organic India Ashwagandha</a> <br />
4- <a href="http://www.pureformulas.com/vitamineral-green-400-vc-by-healthforce-nutritionals.html#sthash.ZlBH9xO3.dpbs" target="_blank">Health Force Nutritionals Vitamineral Green</a><br />
1 <a href="http://www.drugstore.com/source-naturals-same-400mg-enteric-coated-tablets/qxp138738?catid=183315" target="_blank">Every other day- Source Naturals SAMe </a><br />
1- <a href="https://www.drugstore.com/user/login.asp?from=%2flist.asp%3fcatid%3d10782%26product%3d461929&besecure=on&sra=1" target="_blank">Paradise Resveratrol</a><br />
1/4 tsp. - <a href="http://www.pureformulas.com/pure-radiance-c-4-oz-by-the-synergy-company.html?CAPCID=34966299416&cadevice=c&gclid=CIypuqO3or0CFURlfgod3QgAXQ&CA_6C15C=530005240000703367#sthash.pNXDe5oM.dpbs" target="_blank">Pure Synergy Pure Radiance C</a><br />
1 drop- <a href="http://www.beyondbalanceinc.com/product-detail/1929850-parazomin-tm" target="_blank">Beyond Balance Parazomin</a><br />
<br />
LUNCH<br />
1/4 tsp. - Pure Synergy Pure Radiance C<br />
2 droppers- <a href="http://www.pureformulas.com/adrenal-drops-2-oz-by-professional-formulas.html#sthash.qydTCvjK.dpbs" target="_blank">Professional Complementary Health Formulas Adrenal Drops</a> <br />
1 tsp.- <a href="http://abc.eznettools.net/D300003/X379792/Neuro-Antitox%20II%20long%20new.html" target="_blank">Jernigaan Nutraceuticals Neuro-Antitox II Basic in Apple Cider Vinegar</a><br />
<br />
BEDTIME<br />
2- <a href="http://www.pureformulas.com/meriva-500-120-vegetarian-capsules-by-thorne-research.html#sthash.UGDUEb48.dpbs" target="_blank">Thorne Research Meriva-500</a><br />
1- <a href="http://www.beyondbalanceinc.com/product-detail/161148-tox-ease-tm" target="_blank">Beyond Balance Tox-Ease </a><br />
1- <a href="http://www.beyondbalanceinc.com/product-detail/1929791-cyflacalm-tm" target="_blank">Beyond Balance Cyflacalm</a><br />
1- <a href="http://www.pureformulas.com/nacetyllcysteine-120-tablets-by-nutricology.html#sthash.wazROqlC.dpbs" target="_blank">NutnCology NAC</a><br />
1- Paradise Resveratrol<br />
1- <a href="http://www.pureformulas.com/dim-enhanced-delivery-system-120-capsules-by-allergy-research-group.html#sthash.WdTgllOU.dpbs" target="_blank">Allergy Research Group DIM (2 if needed during pms)</a><br />
2- Health Force Liver Rescue 5+ <br />
1 drop- Beyond Balance Parazomin<br />
2 pellets under tongue 6 days a week- <a href="http://www.wisegeek.org/what-is-kali-phosphoricum.htm" target="_blank">Kali Phos </a>(the big ones)<br />
10-12 pellets under tongue once a week- Kali Phos (the little ones)<br />
<br />
AS A MEAL REPLACEMENT<br />
1 Scoop Every Other Day - <a href="http://vitaminde.com/opticleanse-ghi-chocolate-flavor-31-61-oz-896-grams-by-xymogen.aspx" target="_blank">Xymogen OptoCleanse GHI</a> Creamy Chocolate<br />
<br />
EVERY FULL MOON FOR 3 MONTHS<br />
1 tablespoon papaya seeds (read my <a href="http://kiwikeri.blogspot.com/2012/09/treating-parasites-with-papaya-seeds.html" target="_blank">previous post</a> with how-to info.)<br />
<br />
Recommended: <a href="http://www.pureformulas.com/golden-berries-incan-1-lb-by-sunfood.html?CAPCID=35049976376&cadevice=c&gclid=CLrWsvO5or0CFZSPfgodprYAAA&CA_6C15C=530005240000490181#sthash.F5pMYGFj.dpbs" target="_blank">Incan Goldenberries</a> as a super food snack<br />
<br />
REGULAR DETOX: lemon water, rebounding, light exercise (walk around block), dry skin brushing, FIR sauna, epsom salt and peroxide baths, nasal rinses, water enemas<br />
<br />
I love receiving questions and comments and will do my best to respond to each of them. Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com2tag:blogger.com,1999:blog-6040518476911492929.post-84637381979411870602014-03-09T15:34:00.000-07:002014-03-09T16:05:28.167-07:00The Top 6 Things That Helped Me Recover from Lyme Disease (and Flouroquinolone Toxicity)<!--[if gte mso 9]><xml>
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I recently gave a talk to my local <b>Lyme</b> support group entitled <b><i>The Top 6 Things That Helped Me Heal</i>.</b> I am by no means totally well. In fact, I often feel just as junky as I did a year or two years ago (more on this soon), but my good days are getting better and my test results are slowly improving. I've copied and pasted my notes from my talk into this blog post in the hopes that it might provide you with some useful tools or information on your healing journey.<br />
<br />
** Side note: I have recently uncovered the possibility that the symptoms I am left with are not from the Lyme and co., but rather from adverse side effects from taking <a href="http://en.wikipedia.org/wiki/Fluoroquinolone" target="_blank">fluoroquinolone drugs</a> early in my treatment. In fact, I was functioning fairly well until I took those drugs and I have never felt well since then. The more I learn about <a href="http://articles.mercola.com/sites/articles/archive/2012/10/20/fluoroquinolones-side-effects.aspx" target="_blank">fluoroquinolone toxicity</a> the more I realize that most of the symptoms I'm left with are connected to that, but also that my protocol was already addressing it because I am using zyto and muscle testing to find out exactly what is happening in my body and what my body needs. I have joined a <a href="https://www.facebook.com/FluoroquinoloneToxicity" target="_blank">support group</a> for people with side effects from these drugs and I've discovered that these steps I took for Lyme are very similar to the steps that need to be taken to recover from the drug toxicity. The only real difference is that there aren't tick born infections to deal with, but other then that the approach to diet, detox, food, clean living, and generally healing the entire person are beneficial in both situations. </div>
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<u><b>The Top 6 Things That Helped Me Heal From Lyme Disease (and are helping with fluoroquinolone toxicity as well)</b></u><o:p></o:p></div>
<br />
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<br /></div>
<div class="MsoListParagraph" style="mso-list: l12 level1 lfo1; text-indent: -.25in;">
<!--[if !supportLists]--><b>1.<span style="font-family: 'Times New Roman'; font-size: 7pt; font-weight: normal;">
</span></b><!--[endif]--><b>Find
practitioners that do “alternative” types of testing and treatment<o:p></o:p></b></div>
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<br /></div>
<div class="MsoListParagraph" style="mso-list: l8 level1 lfo6; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Energetic testing such as muscle testing,
biofeedback, or zyto can provide you with information about imbalances,
infections, sensitivities, allergies, and help determine which treatment
options to pursue.<b><o:p></o:p></b></div>
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<div class="MsoListParagraphCxSpFirst" style="mso-list: l4 level1 lfo2; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span>
<span style="font-family: Symbol;"> </span> Here are some informational links on muscle testing or ART (autonomic response testing)<br />
http://www.goodhealthinfo.net/herbalists/muscle_testing.htm<br />
http://selfhealth.cc/muscletesting.htm<br />
http://www.youtube.com/watch?v=jQkR4y757co<br />
http://www.youtube.com/watch?v=GuC0FSYCbKQ <br />
<br />
You might be able to find an LLMD, holistic doctor, functional medicine Dr., acupuncturist, Chinese herbalist, or chiropractor who knows how to do this type of testing. After you work for a long while with a trained professional you might consider learning how to test yourself and your loves ones. <br />
<br />
Here is some info on Zyto testing which has many variants and similar other kinds of testing. It requires working with a doctor who has the technology and knows what to do with the information gathered with this really powerful type of tool.<br />
<o:p></o:p></div>
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<span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->ZYTO info. <a href="http://www.zyto.com/technology.html">http://www.zyto.com/technology.html</a><br />
http://www.youtube.com/watch?v=cQOeKOPIKtI<br />
http://www.youtube.com/watch?v=CUYgm_dRJJs <o:p></o:p></div>
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<o:p></o:p></div>
<div class="MsoListParagraph" style="mso-list: l12 level1 lfo1; text-indent: -.25in;">
<!--[if !supportLists]--><b>2.<span style="font-family: 'Times New Roman'; font-size: 7pt; font-weight: normal;">
</span></b><!--[endif]--><b>Live
in a clean/healthy environment<o:p></o:p></b></div>
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<br /></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l1 level1 lfo4; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Move out of moldy homes, get rid of mold
contaminated items, eliminate all sources of mold in home, work, car, etc.<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l1 level1 lfo4; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Switch to all <i>natural products</i> for cleaning,
bathing, beauty, etc. - <b>no fragrances</b><br />
<b> </b>(I even avoid going into places that are highly fragranced, walk around the cleaning isle in the grocery store and the cosmetic counters in department stores, avoid nail salons and beauty stores<o:p></o:p>, etc.)</div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l1 level1 lfo4; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Reduce EMF exposure as much as possible<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l1 level1 lfo4; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Clear out clutter and have an organized, tidy,
pleasing home<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l1 level1 lfo4; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Reduce stress as much possible, surround
yourself with positive people<o:p></o:p></div>
<div class="MsoListParagraphCxSpLast" style="mso-list: l1 level1 lfo4; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Clear up unresolved emotional issues<o:p></o:p></div>
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<br /></div>
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<br /></div>
<div class="MsoListParagraph" style="mso-list: l12 level1 lfo1; text-indent: -.25in;">
<!--[if !supportLists]--><b>3.<span style="font-family: 'Times New Roman'; font-size: 7pt; font-weight: normal;">
</span></b><!--[endif]--><b>Find
out about your food allergies and sensitivities <o:p></o:p></b></div>
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<br /></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l13 level1 lfo5; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span>You can quickly test for hundreds of foods
sensitivities with ZYTO, muscle testing will also help. <o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l13 level1 lfo5; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Use skin prick, blood work or any methods to
gather a complete list of foods to avoid.<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l13 level1 lfo5; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Listen to your body and avoid foods that cause
any type of reactions.<o:p></o:p><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"> <span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><!--[endif]-->Food sensitivities cause inflammation through
out the body resulting in pain, fatigue, brain fog, congestion, bloating, gas,
and poor digestion.<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l13 level1 lfo5; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Eliminating all foods that you are sensitive to
will reduce the burden on your digestive system and give it a chance to recover
and repair itself. Each person needs a
diet that is tailored to their specific needs.<o:p></o:p></div>
<div class="MsoListParagraphCxSpLast" style="mso-list: l13 level1 lfo5; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Remember, aprox. 75% of our immune system is in
our digestive systems. Most Lyme
or Flox patients have leaky gut and candida, avoiding the foods your body can not
tolerate will help your gut heal getting you ready to effectively treat your
infections and imbalances.<o:p></o:p></div>
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<br />
<br /></div>
<div class="MsoListParagraph" style="mso-list: l12 level1 lfo1; text-indent: -.25in;">
<!--[if !supportLists]--><b>4.<span style="font-family: 'Times New Roman'; font-size: 7pt; font-weight: normal;">
</span></b><!--[endif]--><b>Genetic
Testing<o:p></o:p></b></div>
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<br /></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l11 level1 lfo8; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Many people who have chronic health conditions,
who are very sensitive, or who are stuck in their treatment have genetic issues.<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l11 level1 lfo8; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->These issues can cause major roadblocks in
specific detox pathways.<o:p></o:p></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l11 level1 lfo8; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Most genetic issues require very specific
vitamins, minerals, and foods to be consumed or avoided.<o:p></o:p></div>
<div class="MsoListParagraphCxSpLast" style="mso-list: l11 level1 lfo8; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->The information can also help you avoid things
that will cause symptoms, make you worse, or slow your rate of progress.<o:p></o:p></div>
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<br /></div>
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Genetic Testing resources:<o:p></o:p></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l7 level1 lfo9; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><br />
<span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><!--[endif]--><b>ZYTO </b>can uncover some of the mutations and sensitivities can point you
in the direction of others<o:p></o:p></div>
<div class="MsoListParagraphCxSpLast" style="mso-list: l7 level1 lfo9; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Test recommended by Amy Yasko – <b>Nutrigenomic Testing</b> $495 (not covered by insurance) <a href="http://www.holisticheal.com/health-tests/nutrigenomic-testing">http://www.holisticheal.com/health-tests/nutrigenomic-testing</a><o:p></o:p> Focuses on
Methylation cycle in relation to autism, is one of the most thorough for detox
issues, comes with a compete report
and tons of information <o:p></o:p></div>
<div class="MsoListParagraph" style="mso-list: l7 level1 lfo9; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><br />
<span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><b>23andMe</b>
$99 (not covered by insurance)<o:p></o:p></div>
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<a href="https://www.23andme.com/">https://www.23andme.com/</a><o:p></o:p></div>
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Similar to
Yasko’s, but only provides raw data that needs to be converted into useable
information, does not cover all
the SNPs in Yasko’s test <o:p></o:p></div>
<div class="MsoListParagraph" style="mso-list: l2 level1 lfo10; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><br />
<span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><!--[endif]-->Genova Diagnostics <b>Detoxigenomic Profile</b> $495 (might be covered by some insurance)<o:p></o:p></div>
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<a href="http://www.gdx.net/product/10038">http://www.gdx.net/product/10038</a><o:p></o:p></div>
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Focuses on
detox issues for people with environmental, chemical, and medication
sensitivities<o:p></o:p></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l2 level1 lfo10; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><br />
<span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><b>MTHFR</b>
only testing – can be done through your DR. or ordered via MTHFR.net $149 http://www.seekinghealth.com/mthfr-test.html
(covered if ordered by your Dr.) <o:p></o:p></div>
<div class="MsoListParagraphCxSpLast" style="mso-list: l2 level1 lfo10; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Testing for other SNP’s as needed based on your
specific symptoms or health conditions<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
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<br /></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l12 level1 lfo1; text-indent: -.25in;">
<!--[if !supportLists]--><b>5.<span style="font-family: 'Times New Roman'; font-size: 7pt; font-weight: normal;">
</span></b><!--[endif]--><b>Detox
<o:p></o:p></b></div>
<div class="MsoListParagraphCxSpMiddle" style="mso-list: l0 level1 lfo11; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Many of the symptoms we associate with Lyme and Flox are actually caused by toxins.<span style="font-family: Symbol;"> </span>Those of us with genetic mutations have an
increased need for detox support. <b><o:p></o:p></b></div>
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<br /></div>
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<b>Methods
of detox:<o:p></o:p></b></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l9 level1 lfo12; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u><i>Foods for detox:</i></u> cruciferous veggies (broccoli,
kale, boc choy, cabbage, brussel sprouts, etc.), lemon, beets, artichoke,
garlic, avocado, berries, etc.<b><o:p></o:p></b></div>
<div class="MsoListParagraphCxSpLast" style="mso-list: l9 level1 lfo12; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;"> </span></span><br />
<span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u><i>Supplements:</i></u> (remember to get these tested by
your practitoners)<b><o:p></o:p></b></div>
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<b> </b><i>Heel Detox Kit:</i> <a href="http://www.heel.ca/Heel-ca-Detox-Kit.html?ActiveID=10007113">http://www.heel.ca/Heel-ca-Detox-Kit.html?ActiveID=10007113</a><o:p></o:p></div>
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<i>Pekana’s Detox Kit</i> -Apo-Hepat, Itires,
Renelix<o:p></o:p></div>
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<a href="http://www.forresthealth.com/big-three-detoxification-drainage-kit.html">http://www.forresthealth.com/big-three-detoxification-drainage-kit.html</a><o:p></o:p></div>
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<i>Tox- Ease</i> – I used GL because it is
gentler for sensitive people<o:p></o:p></div>
<div class="MsoNormal">
<a href="http://www.beyondbalanceinc.com/product-detail/325670-tox-ease-gl">http://www.beyondbalanceinc.com/product-detail/325670-tox-ease-gl</a><o:p></o:p></div>
<div class="MsoNormal">
<i> List with more ideas for
detox:<o:p></o:p></i></div>
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<a href="http://www.tiredoflyme.com/detoxing.html#.UjYyNhYk_ww">http://www.tiredoflyme.com/detoxing.html#.UjYyNhYk_ww</a><o:p></o:p></div>
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<br /></div>
<div class="MsoListParagraphCxSpFirst" style="mso-list: l6 level1 lfo13; text-indent: -.25in;">
<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u>Rebounding:</u> <a href="http://www.healingdaily.com/exercise/rebounding-for-detoxification-and-health.htm">http://www.healingdaily.com/exercise/rebounding-for-detoxification-and-health.htm</a><o:p></o:p></div>
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<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u>Detox baths</u> – I like Epsom and peroxide. Other people use borax, baking soda,
cornstarch, etc.<o:p></o:p></div>
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<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u>Dry Skin Brushing</u> - <a href="http://www.naturalnews.com/040615_dry_brushing_lymphatic_system_detox.html">http://www.naturalnews.com/040615_dry_brushing_lymphatic_system_detox.html</a><o:p></o:p></div>
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<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u>FIR Sauna</u> - <a href="http://www.naturalnews.com/040615_dry_brushing_lymphatic_system_detox.html">http://www.naturalnews.com/040615_dry_brushing_lymphatic_system_detox.html</a><o:p></o:p></div>
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<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u>Enemas</u> – I use filtered water, other people rave
about the benefits of coffee<o:p></o:p></div>
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<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]--><u>Alka Seltzer Gold</u> – helps alkalize the body<o:p></o:p></div>
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<!--[if !supportLists]--><b>6.<span style="font-family: 'Times New Roman'; font-size: 7pt; font-weight: normal;">
</span></b><!--[endif]--><b>Treating
for other issues<o:p></o:p></b></div>
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<!--[if !supportLists]--><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;">·<span style="font-family: 'Times New Roman'; font-size: 7pt;">
</span></span><!--[endif]-->Through using ZYTO and muscle testing I was able
to identify many other issues that were stressing my body as much or more then
the Lyme itself. Treating these first
will allow your immune system to start to recover and you’ll have a better
chance of getting rid of the TBIs. <o:p></o:p></div>
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</span></span><!--[endif]-->I treated for parasites, lung worm, MarCons,
candida, dental, structural isues, mold, etc. <o:p></o:p></div>
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I love getting questions and comments so please feel free to leave one and I'll do my best to get back to you quickly.<br />
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<!--EndFragment-->Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com3tag:blogger.com,1999:blog-6040518476911492929.post-9856120410695350362013-06-13T18:36:00.000-07:002013-10-11T22:10:55.270-07:00Video update of symptoms<div class="separator" style="clear: both; text-align: center;">
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For the last two years I have been experiencing bizarre neurological episodes that cause involuntary movements. I refer to it as being twitchy because I don't know what else to call it. I haven't met anyone else with this same set of symptoms and it's really hard to describe so I thought I'd make a little video. I did this so that others can see what I mean when I say I'm twitchy, but also with the hopes that maybe someone watching will know someone else with similar symptoms or even better, that someone will know the cause of this. I'm really looking forward to understanding this and working on treating it because when it's not happening I usually feel really good.</div>
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<br /><br /><object width="320" height="266" class="BLOGGER-youtube-video" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0" data-thumbnail-src="https://i1.ytimg.com/s_vi/vvfV-8sYuEo/default.jpg?sqp=CKiz45IF&rs=AOn4CLA77O1DozvEkV5dvSc0DCoGWj0obg"><param name="movie" value="http://www.youtube.com/v/vvfV-8sYuEo?version=3&f=user_uploads&c=google-webdrive-0&app=youtube_gdata" /><param name="bgcolor" value="#FFFFFF" /><param name="allowFullScreen" value="true" /><embed width="320" height="266" src="http://www.youtube.com/v/vvfV-8sYuEo?version=3&f=user_uploads&c=google-webdrive-0&app=youtube_gdata" type="application/x-shockwave-flash" allowfullscreen="true"></embed></object></div>
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Please feel free to share this blog post. As usual questions, comments, and words of encouragement are always welcome. </div>
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com5tag:blogger.com,1999:blog-6040518476911492929.post-11250518777986975932013-04-30T17:33:00.002-07:002013-04-30T17:33:45.523-07:00Curing Lyme DiseaseA lot has happened in the last few months and most of it has been really good. <br />
<br />
Here's a recap.<br />
<br />
Last summer I did a round of <a href="https://www.youtube.com/watch?v=cQCF5eXTAbo" target="_blank">bicillin injections</a> and then the <b>Lyme</b> <b>Disease</b> was "gone" for 4 appointments. Weekly shots in the booty were no fun at all, but I sure made a lot of improvements. Then, in the fall, I went in for <i>biofeedback testing</i> and was informed that I was one life cycle away from being rid of the <i>Lyme spirochetes</i>. I was told that I didn't have any adult bacteria only unhatched ones and once they hatched they would die before they had time to reproduce because I was already on the right stuff to kill them. I was to expect them to hatch in 4-6 weeks and sure enough in October I had symptoms of Lyme return and it showed up in my <i>muscle testing</i> as barely being there. We tweaked my protocol, I started new protocols for MTHFR, detoxing better, and my symptoms improved again.<br />
<br />
About a month ago, I went in for biofeedback testing and we couldn't find the lyme or any tick born infections. Last night, I went back to visit my wonderful doctor in Santa Cruz and here is <br />what we found.<br />
<br />
This is on a scale from 1-5 then 0. <br />
Remember that 1= really bad problem 3= active and needs work 5= barely detectable 0= not present<br />
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.<br />
<br />
<br />
Test 12/11 1/12 4/12 5/12 7/5 7/31 9/12 9/27 10/24 4/13<br />
<br />
<b><a href="http://www.youtube.com/watch?v=sxWgS0XLVqw" target="_blank">Lyme </a> </b> 4 4 2 1 0
0 0 0 4 0<br />
<br />
<b><a href="http://www.youtube.com/watch?v=ZGSWaXy1iHk" target="_blank">Babesia </a> </b> 3 2 2 3 5 3 0 0 0 0<br />
<br />
<b><a href="http://bartonella%20%20/" target="_blank">Bartonella </a> </b> 3 2 2 3 0 3 0 0 0 0<br />
<b><br /></b>
<b>Parasites </b> 0 1 5 0 0 3 3 4 0 0<br />
<b><br /></b>
<b>Viruses </b> 4 3 3 4 4 4 5 4 3<br />
<br />
<b><a href="http://www.immed.org/infectious%20disease%20reports/InfectDiseaseReport06.11.09update/PHA_Nicolson_0709_v4.07.pdf" target="_blank">Mycoplasma</a> </b> 4 4 4 4 5 5 4 4 0 0<br />
<br />
<b>Yeast/mold/fungi</b> 3 3 4 4 3 3 3 4 0 4<br />
<br />
<b>Bacteria </b> 3 2 3 4 2 2 4 0 3<br />
<br />
<b>Neurotoxins </b> 4 4 4 3 2 3 3 3 4<br />
<br />
<b>Metals </b> 4 4 4 3 3<br />
<br />
<b>Emotions </b> 4<br />
<br />
<br />
<u>INTERPRETATION:</u><br />
So I asked him " Can I say that I officially don't have Lyme?" He said"
you can officially say that we aren't able to find any evidence of you
having Lyme." HOOOORAY! I literally did a happy dance in his office! <span style="color: magenta;"><b>I DON"T HAVE LYME ANY MORE!!!!!!!!!!!!!!!!!!!!!!!!!!!! </b></span> Wahoooooooo.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjS5ZOgQAXEZ4Ra5t2xmJhoA1Va8SToSx3NkD7fkyjcbhffgWBEBPm8c1yOQoa24I_k_ouMiNR0quPGH4DNLi_Buc2riZ-cfa2_xenXdSdepyoCoh_9v4SfAegVCK2670bfzcU4FVokic2/s1600/130430-172435.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjS5ZOgQAXEZ4Ra5t2xmJhoA1Va8SToSx3NkD7fkyjcbhffgWBEBPm8c1yOQoa24I_k_ouMiNR0quPGH4DNLi_Buc2riZ-cfa2_xenXdSdepyoCoh_9v4SfAegVCK2670bfzcU4FVokic2/s320/130430-172435.jpg" width="320" /></a></div>
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I can not even begin to describe how ecstatic I am about this. I have been working so hard and waiting so long to hear that I have finally beaten down and successfully destroyed the Lyme.<br />
<br />
So how am I feeling? I'm feeling like I'm still on a gradual up hill climb. I've made a lot of progress in the last 6 months, but I'm still cleaning up the mess it's made. When I finally get my adrenals, hormones, energy, and and gut all balanced and my detox working properly I think I'll feel better then I have in a really really long time. <br />
<br />
So if you are tired, in pain, suffering, and wondering if it will ever end know that it will. It does get better and you can beat the Lyme and get your life back. Stick with your diets, your protocol, rest up, detox, find a great doctor and do whatever you have to to take care of yourself. Nothing is more valuable then your health. Keep on keepin on lymie friends. You can do this.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVXVysvXqZahaZm8tMBXx7fnUrexx9YuVwZTPYwMPcVDtU1wwXA79BzR5wpF-ioY0DVFB5hbca1IWYzQzJux_6jk9QJgkPNq_ehfWZd59aGjwEnTONLKIeZGJ9t5LA8JswSReP1NBsSC8Z/s1600/you-can-do-it-5.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVXVysvXqZahaZm8tMBXx7fnUrexx9YuVwZTPYwMPcVDtU1wwXA79BzR5wpF-ioY0DVFB5hbca1IWYzQzJux_6jk9QJgkPNq_ehfWZd59aGjwEnTONLKIeZGJ9t5LA8JswSReP1NBsSC8Z/s320/you-can-do-it-5.jpg" width="320" /></a></div>
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com1tag:blogger.com,1999:blog-6040518476911492929.post-73714872221614182742013-02-25T12:43:00.002-08:002013-02-25T14:57:19.624-08:0010 Funny Little Ways I Know I'm Getting Better Most of you know that I've been dealing with health issues, specifically <b>Lyme Disease</b> for several years now. One of the questions people ask is "Are you better yet?" I also hear a lot of "When will you be done with all of this?" It's hard to answer these questions because every case of Lyme is different, each treatment plan is tailored to the patient, and there is no way of knowing when it will all be over. But, there are clues along the way that provide hints to improvement. Test results and symptom relief are two indicators that I am doing better. But there are also some some funny little ways that I know I'm getting better. Here is my list of 10 silly clues that my health is headed in the right direction.<br />
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<ol>
<li><b>I can stand up in the shower. </b>I no longer wish I had one of those plastic chairs designed for elderly or disabled people to sit on in the shower. At one point taking a shower was so hard I sometimes didn't take one. Other times I'd take a bath instead. There were also times that I'd find myself daydreaming about a detachable shower head and a shower stool so I could just sit down in the shower. I don't want those things anymore and that's a sign of improvement. </li>
<li><b>I can wear shoes with heels! </b>I've always enjoyed a great pair of heels, a tall pair of boots, and can easily find a reason that I really <i>need</i> a new pair of shoes. There was a time however that just looking at a pair of heels was painful. I wore flats and slippers almost exclusively for probably a good year or so. Recently, I discovered that I can wear heels again, without pain, and you know I'm taking every opportunity I can to rock my new boots and I'm looking forward to wearing wedges as soon as it warms up a little.<b> </b></li>
<li><b>My t-shirts are getting tight. </b>A while ago I lost a bunch of weight and a lot of it was muscle. I was so scrawny that I hardly recognized myself. Just the other day I realized that several of my favorite shirts were feeling tight around the arms and that's when I realized I have gained back some of the weight and a good part of it is muscle. I actually have biceps and shoulders again! </li>
<li><b>I can survive a trip to the grocery store. </b>In the last few weeks I've been able to plan a menu, go grocery shopping, put groceries away, and cook all in the same day! That may not seem like an impressive feat, but there was a period when I would rush through the produce section because the cool air would make me start twitching and before I made it 1/3 of the way through the health food market, I'd be standing in the middle of an isle with a blank stare on my face, not really sure what I was shopping for. I'm glad to be done with that. Neurological episodes and twitching in public was not my favorite thing. I still need help pushing a cart full of groceries, but I'm no longer seriously considering using one of those electric chairs with a basket attached. </li>
<li><b>My toenails are prettier.</b> Maybe that seems like a weird thing to say, but for a while even my toenails looked sick. There were rough and bumpy and not so pretty, but now they've started growing in much smoother and healthier looking. That's evidence to me that the environment in my body is healthier. Yay for pretty toes.</li>
<li><b>I can dance!!!! </b>I got pretty excited when I found a groupon for drop in salsa lessons. I love to dance, but I haven't had the strength or endurance to do it in a while. Since I have been feeling pretty good lately I thought I'd give it a try and I was surprised how well I did. I was able to survive a 50 minute class without a massive recovery time afterwards. Luckily, beginning classes like these have a lot of stopping and starting so I never get too tired. I'm hoping I can go again soon. </li>
<li><b>I can pick up a gallon of milk. </b>Just the other day I was out grocery shopping with my roommate and I picked up a gallon of milk and carried it in from the car. I was so happy when I discovered that it didn't even seem heavy to me. Not that long ago I had to buy a smaller Clean Canteen because my 32 oz size was too heavy for me to lift to my mouth, and now I'm lifting gallons of milk no problem. Maybe that's how I'm getting muscles in my arms again.</li>
<li><b>I can exercise. </b>It's a reasonable assumption that if I was having a hard time showering and drinking water that I wasn't really doing much in the way of exercising. Before Lyme I was really active and it's been hard for me to learn how to be so sedentary and still. I've been happy to discover that I can occasionally exercise again. I've been rebounding, stretching/yoga, walking, lifting little pink 2 pound weights, doing crunches and squats, dancing, I even went indoor rock climbing! My endurance is still low and my recovery time is LONG, but I am able to occasionally get out and move around and I'm loving it!</li>
<li><b>I got behind the wheel. </b>Driving is one of the hardest things for me even still. It requires a lot of mental energy, focus, rapid decision making, memory, attention to details, sensory input, etc. For the most part, I still rely on others to do most of the the driving, but if I'm having a good day I can sometimes drive myself a short distance and it sure is nice to have a little bit of independence every now and then.</li>
<li><b>My zest for life is returning</b>. This is a big one. Simply having enough energy and brain power to even feel excited and desire to go out and do stuff is fantastic. I'm excited for myself and I'm looking forward to trying more and more activities that I haven't done in years. Just feeling desire, motivation, and excitement swell up inside of me is so thrilling. I'm really glad that after all I've been through these last few years it hasn't dulled my spirit and that underneath all of the symptoms and feeling funky I'm still me inside. </li>
</ol>
So, those are my top ten funny little ways that I know I'm getting better. What clues do you have that you are headed in the right direction?<br />
<br />
Questions, comments, and encouragement are always welcome.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-85220256390171868232012-10-29T13:13:00.000-07:002012-11-02T18:53:15.020-07:00On paper I'm pretty healthy.I've seen my<b> Lyme Literate Doctor</b> twice since I last posted. I've been having to see him more regularly because my <b>Lyme Disease symptoms</b> have been so up and down lately, especially the <i>neurological symptoms</i> like <i>involuntary movements</i> and the total brain melt that comes with it.<br />
<br />
I have been saying for a while now that when I don't have to deal with the chronic fatigue, mental slowing, and physical limitations of my neurological symptoms I am feeling pretty good. It seems like maybe my good days are getting better, but there is no real improvement in the bad ones. In fact they seems to be happening more often. Getting the results of my <a href="http://selfhealth.cc/muscletesting.htm" target="_blank">muscle testing </a>really helps me to be able to wrap my head around my ever changing symptoms and make sense of what is going on inside of my body. Here are my most recent results. <br />
<br />
This is on a scale from 1-5 then 0. <br />
Remember that 1= really bad problem 3= active and needs work 5= barely detectable 0= not present<br />
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.<br />
<br />
<br />
Test Dec '11 1/12 4/12 5/12 7/5 7/31 9/12 9/27 10/24<br />
<br />
<b><a href="http://www.youtube.com/watch?v=sxWgS0XLVqw" target="_blank">Lyme </a> </b> 4 4 2 1 0
0 0 0 4 <br />
<br />
<b><a href="http://www.youtube.com/watch?v=ZGSWaXy1iHk" target="_blank">Babesia </a> </b> 3 2 2 3 5 3 0 0 0<br />
<br />
<b><a href="http://bartonella%20%20/" target="_blank">Bartonella </a> </b> 3 2 2 3 0 3 0 0 0<br />
<b><br /></b>
<b>Parasites </b> 0 1 5 0 0 3 3 4 0 <br />
<b><br /></b>
<b>Viruses </b> 4 3 3 4 4 4 5 4<br />
<br />
<b><a href="http://www.immed.org/infectious%20disease%20reports/InfectDiseaseReport06.11.09update/PHA_Nicolson_0709_v4.07.pdf" target="_blank">Mycoplasma</a> </b> 4 4 4 4 5 5 4 4 0<br />
<br />
<b>Yeast/mold/fungi</b> 3 3 4 4 3 3 3 4 0<br />
<br />
<b>Bacteria </b> 3 2 3 4 2 2 4 0<br />
<br />
<b>Neurotoxins </b> 4 4 4 3 2 3 3 3<br />
<br />
<b>Metals </b> 4 4 4 3 3<br />
<br />
<b>Emotions </b> 4<br />
<br />
<br />
<u>INTERPRETATION:</u><br />
I'm looking REALLY good on paper! I got so many zeros (zero = not present) this time that my Dr. wasn't sure he wanted to believe the results. Some how since my last apt a month ago I was able to clear myself of parasites, mycoplasma, mold/yeast, and unfriendly bacteria as well as keep the <b>Babesia</b> and <b>Bartonella</b> away! I've never had so many zeros before. It's almost too good to be true. I think that's how the Dr. was feeling too, sort of a let's not get too excited just yet. We'll see how it all looks at the next apt and if it's similar then we can get really excited. This could have been a fluke. <a href="http://selfhealth.cc/muscletesting.htm" target="_blank">Muscle testing</a> is not 100% accurate, but not many tests for the things I have are.<br />
<br />
We also received results for some blood work I had done and that returned great as well. We did a <a href="http://www.lymediseaseneogen.com/2012/09/21/cd-57-explained/" target="_blank">CD-57</a> (this measures basic immune functioning) and I got a score of 61 which is an improvement over my last score of 33. The goal is 100 for a few months. My complete metabolic panel was all normal. My thyroid is functioning properly. My cholesterol levels were low and he said I have the best healthy to non healthy ratio he's ever seen on paper for a real patient. We also tested my homosysteine levels. These would be high if I was having a hard time detoxing. They weren't high. So either I'm not having detox issues or the heaps of supplements I'm taking for detox are doing their job. Sort of seems like I should have stopped my supplements before doing this test to find out what's really going on.<br />
<br />
This was all great news. The only bummer parts were that I'm still muscle testing for a moderate level of neuro toxins, my level of viruses is up (I think I picked up a tummy bug a few weeks ago), and the fracking Lyme has returned at a level 4. Level four means that it is present and active but not a huge infection. BUMMER! I was really hoping to get another zero for Lyme at this appointment so that I could finally say that I was Lyme free. This new information does however explain why some of my symptoms like night sweats and headaches have returned. It also lines up with what the naturopath said which was that at the time she tested me with biofeedback I didn't have any adult lyme bacteria in me, but that I did have eggs waiting to hatch. I have had some stress in my life recently and I think that the stress gave the lyme a better environment in which to hatch and so they came out to play. It also could have just been that they were ready. Who really ever knows with these things? It could also be that the antibiotic injections I got in the spring/summer sent them into hiding. They made have just made biofilms to hide in and now that the pressure has been off for a while they've come out of hiding. That doesn't feel as right to me, but it's possible I suppose.<br />
<br />
I'm glad to discover that my more minor symptoms have a cause I can understand and I'm hoping that I can kill these new Lyme bacteria before they get too comfortable and reproduce again. I got rid of it once before I can do it again. Now if we could only figure out why it is that I'm getting better on paper, but not so much in real life that would be great. I keep saying this and I'm starting to get pretty frustrated with not being able to find a cause or reliable treatment for the neurological stuff. It's by far my worst symptom, the most frequent, and the most debilitating and we just can't seem to figure it out. Hopefully soon we'll get a clue to help unravel this mystery.<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-58217994415944785252012-09-21T17:23:00.000-07:002012-09-21T17:25:53.523-07:00Treating Parasites With Papaya SeedsMy Lyme Literate Medical Dr or LLMD turned me on to an easy and affordable way to treat <b>parasites </b>with <b>papaya seeds</b>. I've had good success with it and I get a lot of questions about it. In this blog post I'll share some info about the use of papaya seeds for treating parasites, describe how my doctor recommended I use the seeds and offer up some sources for more information. Please remember that this is just information, I am not a doctor, and that you should always check with your physician before starting any new treatment. <br />
<br />
The seeds from papaya fruit have anti-helminthic and anti-amoebic
properties, which means they can kill intestinal worms and other parasites in
our digestive system. Studies are showing that children in Nigeria who are treated with papaya seeds are 75% clear from the buggers after just 7 days of treatment. Papaya seeds are a successful method of treating intestinal parasites with little to no side effects at an affordable price. My LLMD says that this is so easy, affordable, safe, and effective that everyone should do this 1-2 times a year as part of a wellness program.<br />
<br />
There are lots of ways papaya seeds can be ingested. They can be snacked on, used in cooking, blended into smoothies, and ground into powder. Here is how I prefer to take mine. <br />
<br />
<ol>
<li>Buy a non-gmo papaya</li>
<li>scoop out the seeds </li>
<li>rinse the seeds and remove any bits of fruit</li>
<li>spread onto a cookie sheet that has been covered with paper towels</li>
<li>Let dry in a warm place for as many days as necessary. I have a window box that is perfect for this part of the process.</li>
<li>Measure out 1Tablespoon of seeds and grind them in a spice grinder</li>
<li>Carefully put the powder into gel caps. I have a 1/8 teaspoon that helps with this step. I usually get about 15 caps, but it depends on the size you use and how full you pack them.</li>
<li>On an empty stomach right before bed I take all of the pills I filled at once.</li>
<li>Repeat again on the full moon.</li>
</ol>
Here are some websites with more info on how to use papaya seeds to treat parasites and some recipes for smoothies. Just an FYI the seeds taste like black pepper. It's totally okay to just eat them or put them int your food, but keep in mind they are quite peppery. That's why I use the gel caps, I don't really care to taste them.<br />
<br />
Info and smoothie recipe: <br />
<a href="http://superfoodprofiles.com/papaya-seeds-parasites">http://superfoodprofiles.com/papaya-seeds-parasites</a><br />
<br />
Info on the standard honey and papaya seed method:<br />
<a href="http://voices.yahoo.com/a-natural-cure-parasites-study-confirms-honey-6988304.html">http://voices.yahoo.com/a-natural-cure-parasites-study-confirms-honey-6988304.html</a><br />
<br />
Dr. Oz segment on parasite treatment: <br />
<iframe allowfullscreen="allowfullscreen" frameborder="0" height="315" src="http://www.youtube.com/embed/yRglUAttmzQ" width="420"></iframe> <br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-17072864872710525762012-09-20T19:15:00.000-07:002012-09-20T19:15:32.923-07:00My New Protocol for Lyme and MTHFRHere is my updated protocol for treating Lyme related infections and addressing the MTHFR genetic mutation I have that causes me to be vitamin deficient and have difficulty processing folic acid, all of which results in difficulty with detoxing. <br />
<br />
<b><u>Morning</u></b><a href="http://www.blogger.com/goog_316633385"><br /></a><br />
<a href="http://www.beyondbalanceinc.com/product-detail/603510-mc-bab-1" target="_blank">2 drops MC-BAB-1</a><br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank">Neuro-Antitox II Basic</a><a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank"><br /></a>- Apple Cider Vinegar formula<br />
<br />
<a href="http://www.forresthealth.com/big-three-detoxification-drainage-kit.html" target="_blank">Pekana Basic Detoxification & Drainage Kit </a><br />
-18 drop each apo-Hepat, Itires, and Renelix<br />
<br />
2 <a href="http://www.lifespa.com/article.aspx?art_id=63" target="_blank">Ashwagandha</a> 400mg<br />
<br />
3 <a href="http://www.modernherbalist.com/products/isocort.html" target="_blank">IsoCourt</a><br />
<br />
1 B6 <a href="http://www.thorne.com/Products/Vitamins/prd~B116.jsp" target="_blank">Pyridoxal 5'-Phosphate </a><br />
<br />
1 <a href="http://www.holisticheal.com/actifolate.html" target="_blank">ActiFolate</a> from Metagenix<br />
<br />
1/2 tsp <a href="http://abchomeopathy.com/r.php/Ferr-p" target="_blank">Ferrum phos</a> homeopathic remedy<br />
in 1/4 C. water then take 1 tsp. under tongue each night, save mixture and use again in AM<br />
<br />
<b><u><br /></u></b><b><u>Afternoon</u></b><br />
<br />
2 Food Based Multi Vits <br />
<br />
3 IsoCourt<br />
<br />
<b><u>Night</u></b><br />
<br />
2
<a href="http://www.lymebook.com/lyme-disease-sleep-insomnia" target="_blank">Melatonin</a> SR 3 mg. <br />
<br />
1 <a href="http://mylymediseasetreatment.com/lyme-disease-therapeutic/lose-dose-naltrexone-ldn-a-panacea-for-lyme-disease-other-chronic-illnesses/" target="_blank">Low Dose Naltrexone</a> 4.5mg<br />
<br />
1 <a href="http://drohhiraprobiotics.com/" target="_blank">Dr. Ohhira Probiotic </a><br />
<br />
12 tablets of <a href="http://www.mynaturalmarket.com/HealthForce-Chlorella-Manna.html" target="_blank">Chlorella Mana</a><br />
<br />
2 drops MC-BAB-1<br />
<br />
<a href="http://www.forresthealth.com/big-three-detoxification-drainage-kit.html" target="_blank">Pekana Basic Detoxification & Drainage Kit </a><br />
-18 drop each apo-Hepat, Itires, and Renelix <br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank">Neuro-Antitox II Basic</a><a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank"><br />
</a>- Apple Cider Vinegar formula<br />
<br />
1/2 tsp <a href="http://abchomeopathy.com/r.php/Ferr-p" target="_blank">Ferrum phos</a> homeopathic remedy<br />
in 1/4 C. water then take 1 tsp. under tongue each night, save mixture and use again every AM<br />
once a week take 12 pellets instead<br />
<br />
<br />
Over time I will be adding in these additional items. I am choosing to add one at a time because I want to see how each supplement effects me. I am also being careful about not opening up my detox pathways to quickly out of concern that I will dump a bunch of toxins and metals at once and feel really sick for a while. Slow and steady is the trick here.<br />
<br />
2 Zinc Picolinate<br />
2 ProEPA Fish Oil<br />
1 dropper 3 x per day Jernigan Yeast Ease<br />
5 sprays ACZ nano<br />
Increase Cholrella Mana to 12 tabs 2 x per day<br />
7 sprays each side of nose 3 X per day Argentyn 23 silver spray<br />
2 3 X per day Para-Gard<br />
<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com2tag:blogger.com,1999:blog-6040518476911492929.post-87643221258044713412012-09-17T14:50:00.000-07:002012-09-17T14:50:45.485-07:00Muscle Testing and Biofeedback ConfirmationLast week I had an appointment with my LLMD and I told him all about my
visit with the naturopath and what she uncovered with her <a href="http://www.naturedoc1.com/pages/brief.html" target="_blank">biofeedback testing</a>. He was really intrigued and listened closely while I explained
what she had uncovered. He ran me through his normal list of <a href="http://articles.mercola.com/sites/articles/archive/2010/01/09/The-Absolute-Best-Muscle-Testing-System-I-Know-of.aspx" target="_blank">muscle testing</a> for me and added in a few things to explore this new info. I was really excited when their testing was in synch with each other. It's always so validating when two different practitioners with very different testing methods come up with pretty much the same results. These are the results from my muscle testing.<br />
<br />
This is on a scale from 1-5 then 0. <br />
Remember that 1= really bad problem 3= active and needs work 5= barely detectable 0= not present<br />
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.<br />
<br />
<br />
Test Dec '11 1/12 4/12 5/12 7/5 7/31 9/12<br />
<br />
<a href="http://www.youtube.com/watch?v=sxWgS0XLVqw" target="_blank">Lyme </a> 4 4 2 1 0
0 0 <br />
<br />
<a href="http://www.youtube.com/watch?v=ZGSWaXy1iHk" target="_blank">Babesia </a> 3 2 2 3 5 3 0<br />
<br />
<a href="http://bartonella%20%20/" target="_blank">Bartonella </a> 3 2 2 3 0 3 0<br />
<br />
Parasites 0 1 5 0 0 3 4<br />
<br />
Viruses 4 3 3 4 4 4<br />
<br />
<a href="http://www.immed.org/infectious%20disease%20reports/InfectDiseaseReport06.11.09update/PHA_Nicolson_0709_v4.07.pdf" target="_blank">Mycoplasma</a> 4 4 4 4 5 5 4<br />
<br />
Yeast/mold/fungi 3 3 4 4 3 3 3<br />
<br />
Bacteria 3 2 3 4 2 2 4<br />
<br />
Neurotoxins 4 4 4 3 2 3<br />
<br />
Metals 4 4 4 3 3<br />
<br />
<br />
<br />
<b><u>Interpretation:</u></b><br />
<b><u><br /></u></b>
AWESOME! He didn't find ANY signs of active infections of Lyme, Bartonella, OR Babesia! This is great. It doesn't mean that they are totally gone, just that they aren't active right now. If the naturopath was right then it's possible that I really don't have bartonella any more and I just have eggs of the Lyme and Babesia. When I asked my LLMD if I should be on something to kill them if they do hatch he said that if there are still eggs they will only hatch if the environment if favorable for them and that it's possible they will never hatch. I like that idea, but I like the idea of being rid of them even better. I think this is one of those times where the only option is to wait and see if my testing stays at zeros for a long while. This is the first time I have tested negative for Babesia and the first time I have tested negative for all 3 infections. This is progress.<br />
<br />
In addition, this is also the first time that my highest number is a 3. Remember 1 = #1 problem, big deal, bad news. SO right now my worst issues are probably parasites, toxins, and mold. Each of those is substantial enough to make some one really sick. I've still got a bit of work to do, but I'm coming along and making progress.<br />
<br />
What I was most curious about was the naturopath's discovery of a genetic mutation that effects the way my body metabolizes folic acid. The mutation is called <a href="http://mthfr.net/what-is-mthfr/2011/11/04/" target="_blank">MTHFR</a> and is probably more common then most people think. The key thing about this mutation, for me, is that it causes blockages in the <a href="http://www.survivingmold.com/docs/biotoxinpathwayritchieshoemakermd.pdf" target="_blank">detox pathways</a>. I'm beginning to suspect that a lot of the reason I still have such severe neurological symptoms is because I'm not properly detoxing. Expensive lab tests are required to confirm exactly which mutation I have and the complexities of how it is effecting my body. This MTHFR issue causes lots of <a href="http://betterhealthguy.com/joomla/blog/265-methylation" target="_blank">deficiencies in vitamins and minerals. </a>These showed up in my biofeedback testing and again in my muscle testing. My body really wanted B vitamins, folic acid, fatty acids, zinc, etc to address this problem and the associated imbalances. For now that's all the confirmation I get on this issue. I have started the protocol for treating this detox issue and I hope it will help me to feel better. I suspect that I will be doing some lab work soon to get more info because this is a really complex health issue. I'll do a separate post soon that goes into detail on this mutation and it's significance.<br />
<br />
For now, I'm trying to recover from an episode of pretty bad neurological symptoms and twitching. I'm starting a new protocol that focuses on MTHFR and detoxing and I'll be looking into figuring out where there could be mold in our house and buying an ionizer to help clear the air. I'm optimistic that we have finally found the piece of the puzzle that will make all the other pieces fall into place. This MTHFR thing is something I'm going to have to attend to for a long time, possibly for ever, but taking a few vitamins and some folic acid are no biggie if it means I can finally start feeling good and get back to living life.<br />
<br />
I hope all of you are finding what you need to live happy and healthy lives. Thank you for being with me on this journey. <br />
<br />
Questions, comments, and words of encouragement are always welcome.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com7tag:blogger.com,1999:blog-6040518476911492929.post-54535923675492425182012-09-16T09:34:00.000-07:002012-09-16T09:44:55.433-07:00Is there a cure for Lyme Disease?<b>What's taking you so long to to get better? Isn't there a CURE for Lyme Disease? </b><br />
Those of us with Chronic Lyme get asked questions like this all the time. In this blog post I share my thoughts on why treatment is a long process and why we there isn't a magic pill that will cure us.<b> </b><br />
<br />
When we hear the word <b>cure</b> we tend to think about illnesses where we get easily diagnosed, the course of action is known and the results are predictable, like if someone gets pink eye, or pneumonia, or ringworm or some other such thing. In those cases there is a clear cut diagnosis, treatment plan and a high success rate therefore we think of them as having a "cure". Because each case of <b>Lyme Disease</b> is so different, it's still be researched, is only barely understood and it is so very complex, there is not <i>one</i> treatment plan that works almost all of the time for almost all of the people, therefore no "cure".<br />
<br />
Most of us with Lyme believe that after it has become chronic it is impossible to get rid of every single <a href="http://emedicine.medscape.com/article/330178-overview" target="_blank">borellia</a> bacterium in the body, but that's not required in order to be better and get your life back. What we are seeking, in most cases, is a lessening of infection and a strengthening of our immune system until we reach a point where our body can handle and take care of any small amount of infection that may have been hiding out. This is one more reason the Lyme community will say there is no "cure".<br />
<br />
There is however every reason to believe you can and will get your health and your life back. I know two people who have rid themselves of the lyme and co. One of them is very high functioning and you would never know she was sick if you met her now. The other is still working on other heath issues that she likely would have had even without the Lyme.<br />
<br />
Lyme has become an umbrella term and we must deal with the entire puzzle in order to achieve total wellness.
When someone has chronic Lyme what they really have is a random
assortment of <a href="http://www.lyme-symptoms.com/LymeCoinfectionChart.html" target="_blank">tick-born infections</a>, opportunistic infections like yeast,
parasites, and <a href="http://buhnerhealinglyme.com/co-infections/marcons-staph-bacteria/" target="_blank">MarCons</a>, as well as heavy metals, high levels of toxins,
vitamin and mineral deficiencies, and a laundry list of conditions, like adrenal fatigue, that
have resulted from every single bodily system being affected by this
illness. The complexity of this disease, the unique ways it presents in each person, are part of the reason treatment takes so long why there isn't
a cure. <br />
<br />
I am getting myself very close to being able to say that I no longer harbor any tick infections, but I am still dealing with the havoc that it has caused in my body. I am VERY toxic and still fighting off several other infections that were opportunistic after the lyme weakened my immune system. My test results are getting better and my good days are improving, but there is still a lot of work to be done and I often feel similar to how I did when I had high levels of tick infections. I will likely always need to maintain a restricted diet, take a few supplements, and treat my body extra well in order to be sure that I never end up here again. But for now, I can say that there are days where I think I can see the light at the end of the tunnel. Keep fighting the good fight everyone. <br />
<br />
Questions, comments, and words of encouragement are always welcome.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-87952143528457050292012-09-09T20:22:00.000-07:002012-09-09T20:22:23.356-07:00On the Verge Of a Big BreakthroughAbout two weeks ago I went to visit my <a href="http://www.naturedoc1.com/pages/brief.html" target="_blank">naturopath</a> to get a full biofeedback work up. I tend to see her about once a year so she can use her nifty computer based machine to test me and help me understand what is currently happening in my body. I got some really good/helpful/interesting information from her and I wan to share it with you all. I'm excited about what it means for my health and I hope that my sharing can help one of you reading this to find the missing puzzle pieces in your health.<br />
<br />
<b>Warning: This is a LONG blog post, full of medical info.</b> <br />
<br />
The first piece of information I got was really exciting! She said she couldn't find any<a href="http://www.lyme-symptoms.com/LymeCoinfectionChart.html" target="_blank"> tick-born infections </a>(TBIs)!!! I was really excited about that, but also a tad suspicious because I had just been <a href="http://articles.mercola.com/sites/articles/archive/2010/01/09/The-Absolute-Best-Muscle-Testing-System-I-Know-of.aspx" target="_blank">muscle tested</a> a week before and was still coming up slightly positive for <a href="http://www.lymedisease.org/lyme101/coinfections/bartonella.html" target="_blank">Bartonella</a> and had a substantial case of <a href="http://www.lymedisease.org/lyme101/coinfections/babesia.html" target="_blank">Babesia</a>. I was really hoping her test would confirm my LLMD's (Lyme Literate Medical Doctor) <a href="http://lymenaide.wordpress.com/2009/09/17/muscle-testing/" target="_blank">muscle testing</a> which has been saying that I don't have <a href="http://www.youtube.com/watch?v=uzZ0Lt-Bjj8" target="_blank">borellia</a> aka Lyme and it did! The naturopath said that my test results were fluctuating as she went further and tested me for molds. I learned that <a href="http://articles.mercola.com/sites/articles/archive/2011/11/01/recovery-from-toxic-mold-exposure.aspx" target="_blank">mold illness</a> can mimic Lyme and even effect the test results. She felt like she was missing something and wanted to be really really sure when she told me that she couldn't find any more TBIs so she kept checking and tweeking things in her biofeedback system until we finally figured it out. <br />
<br />
According to her, I no longer have Bartonella at all! That's amazing since I'm not directly treating for it right now (unless there is something in the <a href="http://www.beyondbalanceinc.com/product-detail/603510-mc-bab-1" target="_blank">Bab-1 formula</a> that also works against bart). She also said that I don't have any adult organisms for Babesia or Lyme, just eggs waiting to hatch. This is really exciting news because I am already treating for babs and when the eggs hatch they I will already have the meds in my system to kill them. I'm just one life cycle away form getting rid of babs :-) The bonus is that the life cycle is pretty short and she said it should happen in the next few weeks. I think it's happening right now because I'm feeling quite toxic and a bit <a href="https://chronicillnessrecovery.org/index.php?option=com_content&view=article&id=161" target="_blank">herxy</a>. The Lyme buggers have a longer less predictable life cycle and so I'm just hoping that they won't hatch until after I get something to kill them into my system. I'm just afraid t odo that right now because I'm so sensitive and I keep twitching every time I add a killing agent to my protocol. I'll see my LLMD later this week and confirm these findings with him and get something added to my protocol to make sure we kill the baby spirochetes as soon as they hatch. I can't believe that I'm just one life cycle away from really being rid of these fracking infections. I guess this explains why my LLMD hasn't been able to find the Lyme but wasn't ready to say I'm cured quite yet. <br />
<br />
I couldn't help but wonder if I'm making such great progress why do I still have so many symptoms and what the heck is up with the neurological dysfunction and involuntary movements or twitching? It seems like if I'm almost all better I shouldn't have such dramatic symptoms. That's the thing about <a href="http://www.tumblr.com/tagged/lyme-disease?before=1346283231" target="_blank">Chronic Lyme, </a>it weakens your immune system and causes damage through the body resulting in a long list of symptoms and other issues some of which are worse them the Lyme itself. That's why when Lyme is left untreated for years it becomes really hard to treat and people get so sick for so long. Lyme Disease really has become an umbrella term for a whole bunch of conditions that tend to come along with the Lyme bacteria.<br />
<br />
So back to my test results... She dug around and found that I have some hormone imbalances. My <a href="http://www.tumblr.com/tagged/lyme-disease?before=1346283231" target="_blank">Thyroid</a> is a little low ( not surprising as several people in my family take thyroid meds). my <a href="http://www.healingnaturallybybee.com/articles/treat19.php" target="_blank">adrenals</a> are low (I knew that), my<a href="http://www.naturallyknockedup.com/symptoms-of-low-progesterone/" target="_blank"> progesterone</a> level is low and I think I might be a bit estrogen dominate because of that ( maybe that's part of why I can get my skin to clear up?) and there are some imbalances with epinephrine and hydrocortisone. None of this surprised me at all, I have even been told some of it before. It makes sense with my family history, it fits with being chronically fatigued and easily exhausted, and I know that Lyme tends to attack or affect the <a href="http://www.getwellhealth.com/hpa-axis-immune-system-dysfunction/" target="_blank">HPA axis</a><strong> </strong>which controls the Hypothalamus, Pituitary, and Adrenal glands.<br />
<br />
In addition, I am still fighting some other infections and exposures like <a href="http://lymenaide.wordpress.com/2010/01/06/a-look-at-heavy-metals/" target="_blank">heavy metals</a>, an <a href="http://www.stanford.edu/group/parasites/ParaSites2010/Delamon_Alfredo_Rego/paraSITEfinalweb.htm" target="_blank">intestinal parasite</a>, the <a href="http://goodbyelyme.com/free-articles/biofilm/marcons" target="_blank">MarCons staph infection</a> in my sinuses, <a href="http://www.holistichelp.net/candida.html" target="_blank">candida</a>, and I've got a mild case of <a href="http://www.womentowomen.com/digestionandgihealth/leakygutsyndrome-intestinalpermeability.aspx?id=1&campaignno=yeast&adgroup=ag2leakygut&keywords=leaky+gut+syndrome&gclid=CODgieiBqrICFcZxQgodKGkAnQ" target="_blank">leaky gut</a>. None of this surprised me either. I knew about all of these infections and have done a lot of work on each of them at some point. It is useful to know that pretty much everything is hanging around a really low levels. Now I know what I still need to treat and I suspect that if I could get my immune system to work it might be able to take care of some of these bitty bits of infection.<br />
<br />
I mentioned mold earlier, well it turns out I'm being exposed to water damage molds, several species, and it's a toxic burden my body it having a hard time handling. I have got to figure out where in this new house there might be mold and talk to the landlord about getting an inspection or something. This is a potential nightmare I'm just not ready to face quite yet. I'll see what happens at my net apt and go from there. Hopefully we can do something to reduce the exposure and help my body to deal with it without having to get into any rental property issues. I thought we were done with mold when we moved into a warm, dry, newer home. ARG!<br />
<br />
Now here's the really interesting part of the assessment results. We figured out that I have some vitamin and mineral deficiencies and part of the reason is because I have a genetic mutation that reduces my body's ability to convert folate into a useable form. It's called <a href="http://mthfr.net/what-is-mthfr/2011/11/04/" target="_blank">MTHFR</a>. This is new information for me. I had been told before that my x-rays showed a mild cause of spinabifida and that it meant I inherited an issue with folic acid, but what I didn't know is that the folate has a relationship with iron, B vits, zinc, magnesium, and glutathione and that these things are key pieces to a properly functioning detox pathway. AH HA! Finally, it is all starting to make sense. I think that most of my symptoms, especially the neurological ones are simply an issue of having a broken <a href="http://www.survivingmold.com/docs/biotoxinpathwayritchieshoemakermd.pdf" target="_blank">detox pathway</a> because of this genetic folate issue. Check out the <a href="http://mthfr.net/mthfr-mutations-and-the-conditions-they-cause/2011/09/07/" target="_blank">list of conditions</a> this mutation can cause. Read about how <a href="http://www.survivingmold.com/diagnosis/the-biotoxin-pathway" target="_blank">blockages in the detox pathway</a> can effect the body.<br />
<br />
There is a lot of interesting science behind all of this and I'll do additional blog posts on it later, but for now, to keep it simple, I'll just say that I think this is the missing piece to the puzzle. I think this explains why I am one of the lucky people who is more susceptible to getting a chronic illness, why it is taking forever to treat it, why I feel sooo bad even after making so much progress, and why I am so sensitive to so very many things. It could also explain things like exercise intolerance, seasonal and food allergies, digestion issues, sleep disturbances, weak teeth, and might possibly be a major player in every single symptom I still experience. In fact I think that this is one important factor in why each person's journey with Lyme is so different, we all have different genes that make us more or less likely to manifest certain kinds of symptoms.<br />
<br />
This may sound like a horrible thing, OMG you've got a genetic defect! But really I'm so glad I know. It's not something that is going to kill me, it's really pretty easy to treat with a knowledgeable DR.'s help, it is probably linked to most of my symptoms and therefor I should feel a ton better once I start treatment. I'm also really glad to have found this out now so that I can take really good care of myself if we ever try to get pregnant. In fact I'm thrilled to find this out. I have this really strong feeling that getting this under control is going to create a lot of relief for my body, things will start to repair themselves and fall into place, I should start detoxing properly and get rid of the toxins and metals, and my immune system should bounce back and start taking care of the last few little infections. I really think that I'm on the verge of a BIG breakthrough and I'm excited because I think this is going to be the thing that brings me back to being ME.<br />
<br />
I know that was a lot, thank you for taking the time to read it all. I so very much appreciate those of you who stick with me through the nitty gritty of this illness. I'll be seeing my LLMD on Wednesday night and I'm going to share this info with him, ask for his input, see what the muscle testing says and ask for some lab work to confirm it. Although I've simplified it to simply a folic acid problem, it is actually a complex chemistry equation and I want to make sure that we use this opportunity to really get a hold of all the little pieces and put me back together once and for all.<br />
<br />
If you have any suggestions on tests I should request or questions I should ask my Dr. please let me know. I want to go to my apt as prepared as possible. As always, questions, comments, and support are always welcome. Thanks for being beside me on this journey. HUGS!<br />
<br />
<br />
<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-7728694992056639442012-09-04T16:07:00.001-07:002012-09-04T16:07:48.742-07:00Gluten Free SconesI just whipped up a batch of <b>gluten free scones</b>. I've been craving them for weeks now and finally I pulled out my <a href="http://www.amazon.com/000-Gluten-Free-Recipes/dp/0470067802" target="_blank">1,000 Gluten-Free Recipes</a> cook book and got to work.<br />
<br />
I had to use what was available in my kitchen and I modified a recipe, but what I came up with was super delicious. <br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPARhx-cQXlcCL77Fxbhp0AITRoOEDDuAuNROtBCqmHBoVG5tBfgPNu6lNkLcs3uy0qdUoXeOUmMkt45gDMETG2_wv2jvP3uxjFWEq7IoHZVcvlsvkpe8Q4hDk9lIxGy_dmIs1i5WhpNVM/s1600/Gluten+Free+Scones.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPARhx-cQXlcCL77Fxbhp0AITRoOEDDuAuNROtBCqmHBoVG5tBfgPNu6lNkLcs3uy0qdUoXeOUmMkt45gDMETG2_wv2jvP3uxjFWEq7IoHZVcvlsvkpe8Q4hDk9lIxGy_dmIs1i5WhpNVM/s320/Gluten+Free+Scones.JPG" width="320" /></a></div>
<br /><b><u>Sour Cherry and Lemon Gluten Free Scones</u></b><br />
<br />
<i>Ingredients:</i><br />
1/3 C. butter or Earth Balance (I used Earth Balance)<br />
1 T. grated lemon zest<br />
1 large egg room temp.<br />
1/3 C. of sugar<br />
1/2 C. milk or milk substitute (I used rice milk)<br />
1 1/2 C. flour blend * see below<br />
1/2 C. Tapioca flour<br />
1T. Baking powder<br />
1 1/2 tsp. Xanthan gum<br />
1tsp. guar gum<br />
1tsp. salt<br />
handful of dried sour cherries<br />
<br />
** Make a batch of Carol's Sorghum Blend. This can be used in place of
all purpose flour in many recipes. It is used a lot in this cook book
so I often make double batches to have it ready when I want to bake.<br />
<ul>
<li>1 1/2 C sorghum flour</li>
<li>1 1/2 C potato/corn starch</li>
<li>1 C tapioca flour </li>
</ul>
<ol>
<li>Preheat oven to 375</li>
<li>grease a cookie sheet or line with parchment paper </li>
<li>in food processor (I used a stand mixer) process butter, zest, egg, and sugar until blended</li>
<li>Mix together all dry ingredients</li>
<li>Add milk, and all dry ingredients to wet ones and mix until just blended. Dough will be very sticky.</li>
<li>Add in dried cherries to your hearts content.</li>
<li>Use a wet rubber spatula to spread the dough onto the cookie sheet until it's about 3/4" thick. Make the edges straight if possible.</li>
<li>optional: brush the top with 2T of cream and sprinkle with 1T sugar (I skipped this)</li>
<li>Bake for 20 minutes</li>
<li>use a firm spatula to cut the dough into 8-10 pieces, spread across baking sheet and continue baking for 10 more minutes</li>
<li>Optional: glaze with 1C powdered sugar and 2T lemon juice mixed together (I also skipped this and mine were plenty sweet)</li>
</ol>
I ate mine piping hot and topped with <a href="http://www.earthbalancenatural.com/product/vegan-buttery-sticks/" target="_blank">Earth Balance</a> and two jellies, <a href="http://www.santacruzorganic.com/products/fruit-spreads/apricot" target="_blank">apricot fruit spread from Santa Cruz Organic</a> and a homemade cherry strawberry from <a href="http://happygirlkitchen.com/collections/jams?page=1" target="_blank">Happy Girl Kitchen Co.</a> I try to limit the amount of sugar I consume so I skipped adding and extra to the top and they were plenty sweet for me. My husband declared them as his new favorite pastry. <br />
<br />
Now go and make some scones and them come back and tell me how your turned out and what changes you made to accomidate your diet and the flavors you had laying around your kitchen.<br />
<br />
ENJOY! <br />
<br />
<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-104926054489644112012-08-01T17:47:00.002-07:002012-09-13T11:51:39.914-07:00Revised Protocol for Chronic Lyme Disease and Co-InfectionsAfter my appointment last night I have a revised protocol to deal with my most pressing issues of <i>parasites</i>, <i>bartonella</i>, <i>babesia, </i>and <i>candida</i>.<br />
<br />
<b><u>Morning</u></b><a href="http://www.blogger.com/goog_316633385"><br /></a><br />
<a href="http://www.beyondbalanceinc.com/product-detail/603510-mc-bab-1" target="_blank">4 drops MC-BAB-1</a><br />
<br />
1 drop <a href="http://www.beyondbalanceinc.com/product-detail/603509-mc-bar-1" target="_blank">BAR-1</a><br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank">Neuro-Antitox II Basic</a><a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank"><br /></a>- Apple Cider Vinegar formula<br />
<br />
<a href="http://www.forresthealth.com/big-three-detoxification-drainage-kit.html" target="_blank">Pekana Basic Detoxification & Drainage Kit </a><br />
-18 drop each apo-Hepat, Itires, and Renelix<br />
<br />
1 1/2 tsp. <a href="http://pureformulas.com/silvercillin-liquid-16-oz-by-designs-for-health.html" target="_blank">Silvercillin Liquid</a><br />
<br />
20 drops Black Walnut<br />
<br />
2 <a href="http://www.lifespa.com/article.aspx?art_id=63" target="_blank">Ashwagandha</a> 400mg<br />
<br />
3 <a href="http://www.modernherbalist.com/products/isocort.html" target="_blank">IsoCourt</a><b><u></u></b><br />
<b><u><br /></u></b>1 garlic pill<br />
<b><u><br /></u></b><b><u>Afternoon</u></b><br />
<br />
2 Food Based Multi Vits <br />
<br />
3 IsoCourt<br />
<br />
1 dropper <a href="http://www.beyondbalanceinc.com/product-detail/325670-tox-ease-gl" target="_blank">Tox-Ease GL</a><br />
<br />
1 garlic pill<br />
<br />
<b><u>Night</u></b><br />
<br />
1
<a href="http://www.lymebook.com/lyme-disease-sleep-insomnia" target="_blank">Melatonin</a> SR 3 mg. <br />
<br />
1 <a href="http://mylymediseasetreatment.com/lyme-disease-therapeutic/lose-dose-naltrexone-ldn-a-panacea-for-lyme-disease-other-chronic-illnesses/" target="_blank">Low Dose Naltrexone</a> 4.5mg<br />
<br />
4 drops MC-BAB-1<br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank">Neuro-Antitox II Basic</a><a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank"><br />
</a>- Apple Cider Vinegar formula<br />
<br />
1 1/2 tsp. Silvercillin Liquid<br />
<br />
20 drops Black Walnut <br />
<br />
1 drop <a href="http://www.beyondbalanceinc.com/product-detail/603509-mc-bar-1" target="_blank">BAR-1</a><br />
<br />
1 <a href="http://drohhiraprobiotics.com/" target="_blank">Dr. Ohhira Probiotic </a><br />
<br />
1 <a href="http://renewalenterprises.com/flora.html" target="_blank">energetix Flora Synergy</a><br />
<br />
1/2 tsp <a href="http://abchomeopathy.com/r.php/Ferr-p" target="_blank">Ferrum phos</a> homeopathic remedy<br />
in 1/4 C. water then take 1 tsp. under tongue each night<br />
once a week take 12 pellets instead<br />
<br />
And tomorrow I have to do another round of <b>papaya seeds</b> to treat the parasites. I'll be taking 1 Tablespoon of dried seeds, grinding them and putting it in gel caps to take all at once. He has me take them on the full moon because parasites are most active during the full moon and so it's most effective to treat them then. Here is some info on papaya seeds as treatment for parasites: <a href="http://superfoodprofiles.com/papaya-seeds-parasites">http://superfoodprofiles.com/papaya-seeds-parasites</a><br />
<br />
Questions, comments and encouragement always welcome :-)Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-59604543447454606322012-08-01T17:27:00.004-07:002012-08-01T17:27:51.311-07:00A Bump in the RoadAfter my last appointment and the incredible Bicillin injections I was feeling fantastic! In fact I was feeling better then I had in years and I felt like I was improving a little more each day. It was an incredible feeling to be bursting with energy, strength, motivation, vitality, love...in essence I felt alive, very very alive and loving it. <br />
<br />
I can't not even begin to tell you how happy I was to feel like myself again. The best part was discovering that even after all of the crap I've had to deal with <b>Lyme Disease</b> hasn't broken me. I'm still me underneath all the symptoms and I'm still the incredible person I was before those ticks had me for their lunch. This has not broken me and for that I rejoice! <br />
<br />
Perhaps you've noticed that I used the past tense in that first paragraph. Yep, I <i>was</i> feeling fantastic. Not so much any more. I was just plugging along being more active and productive then I have in a very long time and then out of now where I crashed. It was so weird. One morning I was skipping down the street and then later that afternoon my brain was slowing down and I started twitching again.<br />
<br />
I kind of freaked out at first. I started wondering things like:<br />
<ul>
<li>what is causing the neurological symptoms?</li>
<li>I thought we had kicked Lyme in the ass for good, what if it was just hiding and is back in full force now that I'm off antibiotics?</li>
<li>How log is this episode going to last? </li>
<li>What if this is totally separate from the Lyme and it doesn't get better? </li>
<li>What if I'm going to be on a roller coaster for the rest of my life?</li>
<li>How am I ever supposed to have a family if I'm like this? </li>
</ul>
As I said, I kind of freaked out. I know that most of these thoughts were irrational and that I was just in a state of disbelief. I really, really thought I was just weeks away from being healthy for good and I was so very disappointed when my worst symptoms returned. I'm finding that the better I get the harder it is to deal with the setbacks. It's like I can see the light at the end of the tunnel, but I'm running on a treadmill and getting nowhere fast. It's exhausting and frustrating.<br />
<br />
I knew I couldn't take several more weeks of laying in bed barely able to walk or take care of myself and neither could my husband for that matter, so I called my Dr and asked him to squish me in whenever he could. I knew something had changed and I wanted to find out what and deal with it asap so I can get back to feeling fantastic. I saw him last night after he had seen all of his other patients. It was 11:30 when I finally saw him.<br />
<br />
I updated him on my symptoms and we jumped right in to muscle testing to see what the heck was going on. Here are my results.<br />
<br />
This is on a scale from 1-5 then 0. <br />
Remember that 1= really bad problem 3= active and needs work 5= barely detectable 0= not present<br />
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.<br />
<br />
<br />
Test Dec '11 1/12 4/12 5/12 7/5 7/31<br />
<br />
<a href="http://www.youtube.com/watch?v=sxWgS0XLVqw" target="_blank">Lyme </a> 4 4 2 1 0
0<br />
<a href="http://www.youtube.com/watch?v=ZGSWaXy1iHk" target="_blank">Babesia </a> 3 2 2 3 5 3<br />
<br />
<a href="http://bartonella%20%20/" target="_blank">Bartonella </a> 3 2 2 3 0 3 <br />
<br />Parasites 0 1 5 0 0 3
<br />
Viruses 4 3 3 4 4 <br />
<br />
<a href="http://www.immed.org/infectious%20disease%20reports/InfectDiseaseReport06.11.09update/PHA_Nicolson_0709_v4.07.pdf" target="_blank">Mycoplasma</a> 4 4 4 4 5 5<br />
<br />
Yeast/mold/fungi 3 3 4 4 3 3<br />
<br />
Bacteria 3 2 3 4 2 2<br />
<br />
Neurotoxins 4 4 4 3 2<br />
<br />
Metals 4 4 4 3<br />
<br />
<br />
<br />
<br />
<b><u>Interpretation:</u></b><br />
<ul>
<li>YAY!!!!!! I'm still showing negative for <b>Lyme</b>. It's still possible that it's just hiding, but zeros two times in a row is a really good sign :-)</li>
<li><b>Babesia</b> has increased - could explain some of the fatigue, lack of endurance, and light headedness Info on Babesia: <a href="http://lymenaide.wordpress.com/2009/10/10/babesia/">http://lymenaide.wordpress.com/2009/10/10/babesia/</a> AND two videos <a href="http://www.youtube.com/watch?v=JOakxoorjoQ" target="_blank">http://www.youtube.com/watch?v=ZGSWaXy1iHk </a> <a href="http://www.blogger.com/%20http://www.youtube.com/watch?v=JOakxoorjoQ" target="_blank"> http://www.youtube.com/watch?v=JOakxoorjoQ</a></li>
<li><b>Bartonella</b> has increased from nothing to active infection. Dang it! This is most likely what is causing my neurological symptoms. Info on Bartonella: <a href="http://www.lymedisease.org/lyme101/coinfections/bartonella.html">http://www.lymedisease.org/lyme101/coinfections/bartonella.html</a></li>
<li>I still need to work on clearing the <b>candida</b> from my gut. Info on Candida: <a href="http://www.yeastinfectionadvisor.com/systemicyeastinfections.html">http://www.yeastinfectionadvisor.com/systemicyeastinfections.html</a> Video: <a href="http://www.youtube.com/watch?v=ahL2POVPeHA&feature=related" target="_blank">http://www.youtube.com/watch?v=ahL2POVPeHA&feature=related</a></li>
<li>I picked up a <b>parasite</b>, some type of worm. This is what is causing my stomach upset and digestion issues. Who knows where I got it, but the chaos that it's causing on my tummy shows me that any little thing is enough to tip the scales and make me feel sick again. I may be making progress on riding the infections, but I think my immune system is still weak and that's why I pick these up so easily and am so effected by them.</li>
<li>The increases I've made in in my protocol have killed stuff and I have an increase in <b>neurotoxins</b> that are released as the organisms die. This probably also contributes to my neuro symptoms.</li>
</ul>
So in general, things aren't tooooo bad. I'm still getting better over all I just need to refocus my protocol on parasites ( they work as a team with the tick infections and make the whole picture worse) and the co-infections of bartonella and babesia.<br />
<br />
Now that I know what is going on I feel quite a bit calmer. I can wrap my head around the symptoms and I've got a new protocol to address my current needs. I'm feeling a little better in general after almost a week in bed and a bit better now that I know what is happening inside my body. I'm all ramped up to take another swing at these buggers and get back to where I was just a week and a half ago. Hopefully this is one of the last major bumps in the road that leads to long term health.<br />
<br />
Thanks for reading. Your questions and comments are always welcome.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-80900137610568445122012-07-10T12:32:00.002-07:002012-07-10T12:37:04.110-07:00Current Protocol - What I'm taking to treat chronic LymeOne of the things I love the most about <a href="http://www.drkatharina.com/nutritional-medicine/" target="_blank">muscle testing or A.R.T.</a> is that my <b>Lyme Disease</b> treatment or protocol changes often to adapt to the changes happening in my body. I think this method works really well for me because I get to find out what to take, when to take it, how much to take, and it's not a guessing game any more. I finally feel like I know that each and every pill or drop I ingest is actually doing something beneficial for me and I no longer feel like I'm just taking handfuls of pills and hoping that something will work. Instead I'm taking just what I need and it is working. <br />
<br />
This is my current treatment plan and it's the smallest, easiest protocol I've had since I started treating in 2008. YAY!!!!<br />
<br />
<br />
<b><u>Morning</u></b><a href="http://www.blogger.com/goog_316633385"><br /></a><br />
<a href="http://www.beyondbalanceinc.com/product-detail/603510-mc-bab-1" target="_blank">4 drops MC-BAB-1</a><br />
<br />
1 dropper <a href="http://www.jernigannutraceuticals.com/Yeast-Ease_long_new.html" target="_blank">Jernigan Yeast Ease</a><br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank">Neuro-Antitox II Basic</a><a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank"><br /></a><br />
- Apple Cider Vinegar formula<br />
<br />
<a href="http://www.forresthealth.com/big-three-detoxification-drainage-kit.html" target="_blank">Pekana Basic Detoxification & Drainage Kit </a><br />
-15 drop each apo-Hepat, Itires, and Renelix<br />
<br />
1 tsp. <a href="http://pureformulas.com/silvercillin-liquid-16-oz-by-designs-for-health.html" target="_blank">Silvercillin Liquid</a><br />
<br />
2 <a href="http://www.lifespa.com/article.aspx?art_id=63" target="_blank">Ashwagandha</a> 400mg<br />
<br />
1 <a href="http://www.drrons.com/unique-e.htm" target="_blank">Unique E</a> -400 IU<br />
<br />
3 <a href="http://www.modernherbalist.com/products/isocort.html" target="_blank">IsoCourt</a><b><u><br /></u></b><br />
<b><u><br /></u></b><b><u>Afternoon</u></b><br />
<br />
2 Food Based Multi Vits <br />
<br />
3 IsoCourt<br />
<br />
1 dropper <a href="http://www.jernigannutraceuticals.com/Yeast-Ease_long_new.html" target="_blank">Jernigan Yeast Ease</a><br />
<br />
<b><u>Night</u></b><br />
<br />
1
<a href="http://www.lymebook.com/lyme-disease-sleep-insomnia" target="_blank">Melatonin</a> SR 3 mg. <br />
<br />
1 <a href="http://mylymediseasetreatment.com/lyme-disease-therapeutic/lose-dose-naltrexone-ldn-a-panacea-for-lyme-disease-other-chronic-illnesses/" target="_blank">Low Dose Naltrexone</a> 4.5mg<br />
<br />
4 drops MC-BAB-1<br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank">Neuro-Antitox II Basic</a><a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html" target="_blank"><br />
</a><br />
- Apple Cider Vinegar formula<br />
<br />
1 tsp. Silvercillin Liquid<br />
<br />
1 dropper <a href="http://www.jernigannutraceuticals.com/Yeast-Ease_long_new.html" target="_blank">Jernigan Yeast Ease</a><br />
<br />
1 <a href="http://drohhiraprobiotics.com/" target="_blank">Dr. Ohhira Probiotic </a><br />
<br />
1 <a href="http://renewalenterprises.com/flora.html" target="_blank">energetix Flora Synergy</a><br />
<br />
1/2 tsp <a href="http://abchomeopathy.com/r.php/Ferr-p" target="_blank">Ferrum phos</a> homeopathic remedy<br />
in 1/4 C. water then take 1 tsp. under tongue each night<br />
once a week take 12 pellets instead<br />
<br />
I'd love to hear what you're taking that works and if you've taken any of these things. Questions and comments always welcome, but remember if you don't have anything nice to say it might be better not to say anything :-)Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-82879487953195496022012-07-06T19:26:00.000-07:002012-07-06T19:26:51.250-07:00Fantastic News! I've been on the new protocol that includes <a href="http://www.youtube.com/watch?v=cQCF5eXTAbo" target="_blank">Bicillin injections</a> for just over 5 weeks now. For the most part I have been feeling really good. The twitching has stopped and I can feel my symptoms lifting. I'm sleeping less, have more energy and the brain fog is lifting!!!! Hooooraaayyyy!<br />
<br />
It's been really nice finding out that underneath all the layers of sickness and funk I'm still there and I'm still me. As my energy returns I'm discovering just how deeply this illness has effected my entire life. I hadn't fully realized that it permeated every single moment of my life. I had grown so accustomed to lyme "normal" that I didn't realize I was so tired I was moving though space and every moment of my life in a way that wasn't fully authentic. As my symptoms lift I find, for example, that I can suddenly climb stairs without effort, in fact I can bounce up them again. My week little voice has got it's uumph and confidence back. I'm feeling creative and I'm up and moving around most of the day. I even went swimming and to a festival! It's been really nice to discover myself shinning through as the fog begins to lift more then it has in years. When it happens I sometimes think to myself, "Oh yeah, here I am and check me out, I'm freaking awesome!" It's a really, really good feeling.<br />
<br />
SO...I had an appointment with my doctor last night and we retested all of my issues and my supplements. The results were surprising. Both the doctor and I we expecting improvements in both how I feel and in my numbers, but we had no idea how good it would be.<br />
<br />
Remember that 1= really bad problem 3= active and needs work 5= barely detectable 0= not present<br />
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.<br />
<br />
<br />
Test Dec '11 1/12 4/12 5/12 7/5<br />
<br />
<a href="http://www.youtube.com/watch?v=sxWgS0XLVqw" target="_blank">Lyme </a> 4 4 2 1 0 (we triple checked)<br />
<br />
<a href="http://www.youtube.com/watch?v=ZGSWaXy1iHk" target="_blank">Babesia </a> 3 2 2 3 5<br />
<br />
<a href="http://bartonella%20%20/" target="_blank">Bartonella </a> 3 2 2 3 0 <br />
<br />
Parasites 0 1 5 0 0<br />
<br />
Viruses 4 3 3 4 4<br />
<br />
<a href="http://www.immed.org/infectious%20disease%20reports/InfectDiseaseReport06.11.09update/PHA_Nicolson_0709_v4.07.pdf" target="_blank">Mycoplasma</a> 4 4 4 4 5<br />
<br />
Yeast/mold/fungi 3 3 4 4 3<br />
<br />
Bacteria 3 2 3 4 2 <br />
<br />
Neurotoxins 4 4 4 3 <br />
<br />
Metals 4 4 4 3<br />
<br />
<br />
Interpretation: WAAAAAAHOOOOO!!!!!!!!!!!! (happy dance)<br />
<ul>
<li>This is the first time I have had 3 zeros!!!!</li>
<li>parasite free for two months in a row!</li>
<li>NO more bartonella</li>
<li>NO more Lyme (fingers crossed)</li>
<li>Almost rid of mycoplasma AND babesia</li>
</ul>
What, WHAT? Did I just say I currently don't have LYME? Yes, yes I did!!!<br />
<br />
After starting the Bicillin I started feeling better and better until about a week ago when I started to have some symptoms creep back. It looks like taking the Bicillin for 5 weeks did a little number on my tummy and now I've got an increase in yeast and gut bacteria and toxins. These things are to be expected and are likely the cause of my remaining symptoms. It's a tad disappointing to feel funky after feeling so fantastic for several weeks, but at least I know for sure that we are making progress and that I'm in the home stretch right now. <br />
<br />
So as of now my doctor says we can't say that I'm cured because there is a chance that he can't detect the Lyme because it's gone into a dormant cyst form, but he said we can say that at least for yesterday I didn't have Lyme!!! He's guessing that as we're making progress and peeling off the layers of illness my body will heal and my immune system will get stronger and things will continue to progress faster and faster (double wahoo and one more happy dance!!!!!!). He's estimating that I'll be better or almost totally better in 2-3 months!!!!!!! No one has ever said that before. I have always been told a year - year and a half for the last 4 years. Things are getting really exciting around here.<br />
<br />
What surprises me the most about this great news is how fast it happened. I've been sick for so long and I feel like I've tried everything. The spring was really rough for me, I was twitching so bad and for sooooo long that I was beginning to think I might just have to accept that life was as good as it was going to get. I never expected that 5 shots in the ass would be enough to cause such a dramatic improvement, let alone a possible remission of Lyme. It just blows my mind that one day I can be sick as all get out and then just weeks later feel better then I have in years. It really is amazing. <br />
<br />
For now, we've adjusted my treatment protocol. It's focused on the last bit of babesia, yeast, toxins, and bacteria in my gut. It's the smallest protocol I've had since I started treatment in 2008. I'll do another post with the details very soon. I have to be extra careful with my diet, so no more gluten free cookies for a while. I'm really excited to find out what life will be like after the rest of these nagging symptoms lift and are gone for good.<br />
<br />
Keep on keeping on! <br />
<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-63434210037851338502012-06-06T15:18:00.001-07:002012-06-19T18:26:27.299-07:00These are a few of my favorite foodsPeople often ask me what I eat if I can't eat wheat, dairy, and about a zillion other things. Well, I've made a list for you of some of my favorite foods. Hopefully you'll find some inspiration here. I'm sure you'll discover that my diet is anything but boring. Comments and questions are always welcome. Bon apetit! Did I spell that right?<br />
<br />
<b><u>Breakfast</u></b><br />
<br />
Scrambles - scrambled eggs with whatever I can find in the fridge ( potatoes, spinach, zucchini, asparagus, turkey sausage, tomatoes, rice, black beans, tomatoes, chard, kale, quinoa, leftovers, etc.)<br />
<br />
Toast and scrambles eggs - I like udi's breads and bagels and Food for life's english muffins<br />
<br />
Homemade Muffins - pumpkin or fresh blueberry are my favs<br />
<br />
Pancakes - usually homemade, but occasionally Trader Joe's GF if I don't feel well<br />
<br />
Crustless Quiche - There is a recipe on my blog<br />
<br />
Breakfast Sandwiches - Bagel, egg, turkey sausage, turkey bacon or sliced lunch meat, cheese (daiya), spinach, pesto (homemade), tomato<br />
<br />
Quinoa - I'll cook it with stock and then top it with eggs and spinach and maybe some turkey sausage<br />
<br />
Pigs in a blanket muffins - Just make muffins, but use pancake batter and stir in breakfast sausage and bake - YUM!<br />
<br />
Omelet - stuff with your fav fillings<br />
<br />
<br />
<b><u>Lunch</u></b><br />
<br />
Most of the time I eat dinner leftovers for lunch or I snack heavily, but sometimes I will make something just for lunch.<br />
<br />
Turkey Sandwich on Udi's bread - When I get really inspired I'll use pesto, sundried tomatoes, olives, cheese, spinach, lettuce, tomato, cucumber, sprouts, etc.<br />
<br />
GF mac n cheese - I make it with Earth Balance and rice milk to lower the amount of dairy<br />
<br />
Turkey dogs - no bun<br />
<br />
Nachos<br />
<br />
Frozen GF pizza<br />
<br />
Frozen GF chicken nuggets<br />
<br />
Tuna on thin rice cakes or rice crackers<br />
<br />
Salad<br />
<br />
Green apple and cashew butter <br />
<br />
Taquitos<br />
<br />
Grilled "cheese" sandwiches<br />
<br />
Canned soup<br />
<br />
Thai noodle soup - similar to top ramen<br />
<br />
<br />
<b><u>Dinner</u></b><br />
<br />
Most of my meal planning revolves around dinner. I find that there are often enough leftovers for lunches and the extra ingredients can be used in breakfast and lunches.<br />
<br />
Stir Fry and Rice - I usually use chicken and lots of veggies and top with GF sauces from San-J or I make my own <br />
<br />
Fried Rice - Can be made with Stir Fry ingredients, I usually use chicken and veggies and GF tamari soy sauce, ut you can use any leftover meat or even tofu<br />
<br />
Taco night - crunchy or soft corn tortillas, ground chicken or turkey, black beans, rice, and all the fixins<br />
<br />
Nachos - Use taco night left overs and pile 'em high for nachos. I like to get chips with flax or something as healthy as possible<br />
<br />
Enchiladas - I'll use any leftover taco night fillings and add potato, chard, spinach, olives, green beans, or any other veggies I have available, roll into GF tortillas and top with green enchilada sauce. I like the GF tortillas at New Leaf the best, but I'll use teff I can't find them.<br />
<br />
Roasted Chicken - I get a whole chicken, brine it over night and bake it with carrots and potatoes<br />
<br />
Chicken Soup - After we've eaten most of the chicken I'll make soup out of it. Sometimes I add quinoa, GF noodle, or rice, but always use lots of veggies<br />
<br />
Cornbread and Chili - I like Pamela's mix the best, just top with black bean chili and you're done!<br />
<br />
Baked Potatoes and Chili - Same as above. Sometimes I make my own chili other time I used canned.<br />
<br />
Chili Dogs - self explanatory <br />
<br />
Hearty Salad - This is an everything but the kitchen sink type salad. We try to eat this once a week or so to be sure we're eating enough veggies. I make a typical salad with garden veggies and we'll top it with any number of things - chicken, turkey bacon, sunflower seeds, pumpkins seeds, cranberries, raisins, sliced apple, toasted nuts, GF croutons, beans, sprouts, mandarin oranges, cabbage, anything <br />
Burgers - We'll get ground turkey or chicken and mix it with fun stuff like fresh garlic, parm cheese, pesto, sun dried tomatoes, etc. and let it sit for at least an hour before we grill 'em. I usually top mine off with agave sweetened BBQ sauce, cheese, tomato, and wrap in romaine leaves. I've come to prefer it without the bun.<br />
<br />
GF Pasta - right now my favorite is quinoa pasta, but some of the brown rice ones are good too. I have two styles of sauce that I alternate between. One is dairy free creamy pesto with veggies and the other is homemade tomato sauce made with whatever I have<br />
<br />
Pizza- homemade GF crust topped with all kinds of yummy stuff<br />
<br />
Creamy Polenta - topped with mushroom sauce, pesto, or marinara and cheese<br />
<br />
GF beer battered fish - I usually use talapia or cod <br />
<br />
Homemade veggie sushi - just make sticky rice and julienne a bunch veggies and roll 'em up<br />
<br />
Crustless Quiche - recipe on my blog, just bake yummy stuff with scrambles eggs and call it dinner<br />
<br />
Apricot Teriyaki Chicken - recipe in the 1000 GF recipes cook book<br />
<br />
Bruchetta - I'll make GF french bread and my own bruchetta topping and pair it with salad and call it dinner<br />
<br />
Thanksgiving dinner- roast turkey breast, mashed potatoes, green beans, salad<br />
<br />
Sausages - we like the sundried tomato chicken sausages at TJ's because they don't have intestines<br />
<br />
Felafel Balls with salad and rice or quinoa <br />
<br />
Tamales - usually store bought, but sometimes we get homemade ones from local families<br />
<br />
<br />
<u><b>Side Dishes</b></u><br />
<br />
Homemade fries or potato wedges - I like to use sunflower oil and itallian herbs<br />
<br />
Carrot fries - slice like fries, top with high heat oil and sea salt and bake at 425 until slightly blackened<br />
<br />
Quinoa - add flavor by cooking with stock<br />
<br />
Brown rice<br />
<br />
Salad<br />
<br />
Grilled veggies - we like zucchini and asparagus the best<br />
<br />
Veggies sauteed in garlic and butter<br />
<br />
Carrots and snap peas in creamy carrot "butter"<br />
<br />
Steamed veggies<br />
<br />
Cucumber and tomato salad<br />
<br />
Asian Cucumber cups<br />
<br />
Green Beans with olive oil and lemon<br />
<br />
Baby Carrots and hummus<br />
<br />
Mashed Potatoes and Gravey<br />
<br />
Sweet Potato fries<br />
<br />
<br />
<b><u>Snacks</u></b><br />
<br />
Homemade granola bars <br />
<br />
GF pretzels<br />
<br />
Green apple with cashew butter<br />
<br />
Fresh Fruit<br />
<br />
Fruit Leather<br />
<br />
Nuts - mostly cashews<br />
<br />
Popcorn (rarely)<br />
<br />
Corn chips and salsa<br />
<br />
Fresh veggies with hummus<br />
<br />
Dried fruit<br />
<br />
GF crackers<br />
<br />
Rice cakes - I like the thin ones the best<br />
<br />
Pumpkin or sunflower seeds<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com2tag:blogger.com,1999:blog-6040518476911492929.post-10080019144471036332012-06-01T21:02:00.000-07:002012-06-01T21:02:09.486-07:00My current Lyme Disease Treatment PlanPeople often ask me what I'm taking to treat Lyme Disease, it's co-infections, and all the assorted symptoms and related issues that come along with it. I've put together a list of what I take and provided links to helpful resources as often as possible, just click on the colored words to get more info about the product or it's use. Please feel free to comment or ask questions.<br />
<br />
<b><u>Morning</u></b><br />
<a href="http://www.blogger.com/goog_316633385"><br /></a><br />
<a href="http://www.beyondbalanceinc.com/product-detail/603510-mc-bab-1" target="_blank">3 drops MC-BAB-1</a><br />
<br />
1/2 tsp. <a href="http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20CNS-PNS.pdf" target="_blank">Neuro-Antitox II CNS/PNS </a><br />
- Apple Cider Vinegar formula<br />
<br />
1/2 tsp. <a href="http://pureformulas.com/silvercillin-liquid-16-oz-by-designs-for-health.html" target="_blank">Silvercillin Liquid</a><br />
<br />
2 <a href="http://www.lifespa.com/article.aspx?art_id=63" target="_blank">Ashwagandha</a> 400mg<br />
<br />
2 <a href="http://www.foundhealth.com/lyme-disease/lyme-disease-and-andrographis" target="_blank">Andrographis</a> 400mg<br />
<br />
1 Acetyl -L-Carnitine 500mg<br />
<br />
1 <a href="http://www.drrons.com/unique-e.htm" target="_blank">Unique E</a> -400 IU<br />
<br />
2 Food Based Multi Vits from Advanced Nutritional System <br />
<br />
3 <a href="http://www.modernherbalist.com/products/isocort.html" target="_blank">IsoCourt</a><br />
<br />
2 <a href="http://www.integrativeinc.com/products/Products-by-Health-Concern/Immune-and-Respiratory/Seasonal-and-Environmental/73686-Isoquercetin.aspx" target="_blank">Isoquercetin</a> 100 mg.<br />
<b><u><br /></u></b><br />
<b><u><br /></u></b><br />
<b><u><br /></u></b><br />
<b><u>Afternoon</u></b><br />
<br />
1 Acetyl -L-Carnitine 500mg<br />
<br />
2 Food Based Multi Vits <br />
<br />
3 IsoCourt<br />
<br />
1 <a href="http://www.youtube.com/watch?v=sR5QegnoKKo" target="_blank">Lithium Orotate </a><br />
<br />
1 Vitamin D3 5000 IU<br />
<br />
<b><u>Night</u></b><br />
<br />
2 <a href="http://www.lymebook.com/lyme-disease-sleep-insomnia" target="_blank">Melatonin</a> SR 3 mg. <br />
<br />
1 <a href="http://mylymediseasetreatment.com/lyme-disease-therapeutic/lose-dose-naltrexone-ldn-a-panacea-for-lyme-disease-other-chronic-illnesses/" target="_blank">Low Dose Naltrexone</a> 4.5mg<br />
<br />
<a href="http://www.forresthealth.com/big-three-detoxification-drainage-kit.html" target="_blank">Pekana Basic Detoxification & Drainage Kit </a><br />
-15 drop each apo-Hepat, Itires, and Renelix<br />
<br />
3 drops MC-BAB-1<br />
1/2 tsp. Neuro-Antitox II CNS/PNS<br />
- Apple Cider Vinegar formula<br />
<br />
1 tsp. Silvercillin Liquid<br />
<br />
2 Andrographis 400mg <br />
<br />
1 <a href="http://www.lymebook.com/lyme-disease-diet-and-supplements-vitamin-a-b-c-magnesium" target="_blank">Magnesium Taurate</a> 125mg<br />
<br />
1 Acetyl -L-Carnitine 500mg <br />
<br />
1 Lithium Orotate<br />
<br />
2 Isoquercetin 100 mg. <br />
<br />
1 <a href="http://drohhiraprobiotics.com/" target="_blank">Dr. Ohhira Probiotic </a><br />
<br />
<br />
Soon I will Be adding <a href="http://www.lymebook.com/lyme-grapefruit-lauricidin-colloidal-silver-samento" target="_blank">Smilax</a> and weekly <a href="http://www.lymebook.com/tetracycline-doxycycline-minocycline-macrolide-ketolide-ketek-cephalosporin-metronidazole-lyme-disease" target="_blank">Bicillin Injections</a><br />
<br />
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-43561465756127663352012-05-31T21:03:00.002-07:002012-05-31T22:39:27.294-07:00Doctor's VisitLast night I went for an appointment with my <a href="http://www.drrandy.org/" target="_blank">Lyme doctor.</a> I've been having a lot of <a href="http://lookingatlyme.blogspot.com/2010/01/neurological-symptoms-lyme-disease.html" target="_blank">neurological symptoms</a> lately so I was really looking forward to seeing him.<br />
<br />
We reviewed my current symptoms: fatigue, involuntary movements, tingly arms, difficulty walking, slowed speech and cognitive function. In general I feel like if only I didn't have these few really debilitating symptoms I would be doing really well. I can feel the old me trying to rise to the surface but it's as if I'm weighted down by these few major issues. We also reviewed the list of my old symptoms and celebrated having so many of them resolved.<br />
<br />
Then we moved on to <a href="http://articles.mercola.com/sites/articles/archive/2010/01/09/The-Absolute-Best-Muscle-Testing-System-I-Know-of.aspx" target="_blank">muscle testing or ART</a> as some people call it. We tested for my current infections and compared them to my last visits. He uses a ranking system where 1 is the most active or biggest problem, 3 is present but not incredibly active, 4-5 is detectable but at a verylow level, and 0 is not present at all. Here is an over view of my ART results.<br />
<br />
Test Dec '11 1/12 4/12 5/12<br />
<br />
<a href="http://www.youtube.com/watch?v=sxWgS0XLVqw" target="_blank">Lyme </a> 4 4 2 1 <br />
<br />
<a href="http://www.youtube.com/watch?v=ZGSWaXy1iHk" target="_blank">Babesia </a> 3 2 2 3<br />
<br />
<a href="http://bartonella%20%20/" target="_blank">Bartonella </a> 3 2 2 3 <br />
<br />
Parasites 0 1 5 0<br />
<br />
Viruses 4 3 3 4<br />
<br />
<a href="http://www.immed.org/infectious%20disease%20reports/InfectDiseaseReport06.11.09update/PHA_Nicolson_0709_v4.07.pdf" target="_blank">Mycoplasma</a> 4 4 4 4<br />
<br />
Yeast/mold/fungi 3 3 4 4 <br />
<br />
Bacteria 3 2 3 4 <br />
<br />
Neurotoxins 4 4 4 <br />
<br />
Metals 4 4<br />
<br />
<br />
Looking at my results we can see that in general I have really good numbers. Pretty much everything is at a 4 except for babs and bart which are 3s (present but not reeking havoc). I have gotten rid of ALL parasites. I think my effort to avoid sushi has helped with this along with some good supplments. I'm doing pretty well except for a raging case of Lyme Disease.<br />
<br />
What I find really interesting about this method of testing is that it often explains how I'm feeling. I had said that I felt like if I cold get these last few really awful symptoms to clear I would be feeling great and i think I was right. Once I get this Lyme under control I should be feeling a lot better because I'm not dealing with as many big infections any more.<br />
<br />
The next thing we did was to test all of my current protocol. We discovered that as usual I'm really sensitive to a lot of things and about half of my treatment was no longer working for me. Taking so many things that my body was no longer liking might also have been contributing to me not feeling so well these last 4-6 weeks.<br />
<br />
We removed all of the stuff my body didn't want, adjusted the doses on a few items, and then added in just a few new things to treat this raging case of Lyme. I left with a good understanding of what is happening inside my body and a significantly smaller protocol which made me happy.<br />
<br />
One of the best lessons I have learned since doing this muscle testing is that sometimes when I think I'm not getting better, that's not the case. Instead it sometimes is just a switching of dominance in my my infections. One month I may feel very neuro, another month short of breath, and another my gut may be hurting. I've learned to recognize that just means that things are changing. As I clear out one infection another rises to the top and I attack it. In general, my results are getting better and I'm on a good path.<br />
<br />
I'll be doing another blog post soon with my new protocol, but for now I'll share that he wants me to go back on antibiotics for a little while. I tested well for <a href="http://www.youtube.com/watch?v=cQCF5eXTAbo" target="_blank">Bicillin injections</a>. He thinks 4-6 weeks at one injection a week should perk me back up. If it doesn't knock out the entire infection we will rotate to something else because after a while the Lyme bacteria adapt and it looses it's effectiveness. I'm not looking to the pain that comes along with the injections or the ensuing <a href="http://www.lymebook.com/jarisch-jarish-herxheimer-reaction-herx-lyme-disease" target="_blank">herx reaction</a>, but I am really excited about feeling a lot better and kicking Lyme in the ass once and for all.<br />
<br />
Questions and comments always welcome.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-47474581613516762762012-05-10T15:51:00.001-07:002012-05-10T15:51:55.519-07:00The Unpredictibility of Chronic Illness<div class="separator" style="clear: both; text-align: left;">
One of the hardest parts about living with a chronic illness like <b>Lyme Disease</b> is the unpredictability of it. Each day when I wake up I have no idea how I am going to feel and what I will be able to do that day. I start each day with good intentions of feeling great and a list of things I'd like to do, but things don't always go the way I'd like them to. Today was one of those days.</div>
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Today I woke up feeling pretty good. I was excited about the beautiful weather and I was able to get a quick start to the day. I went out for a really nice appointment with my chiropractor and dropped off a prescription at the pharmacy. One the way home I started feeling withdrawn and tired. I think I yawned 5 or 6 times on the 10 minute drive home. I thought maybe I would need to take a nap this afternoon, but by the time I had made it upstairs, gone to the bathroom and walked into the kitchen to try to make lunch I was moving at the speed of a snail. I found myself standing in the kitchen, slightly hunched over, silently staring at the sandwich fixings my husband had set out. I wasn't moving or talking and I found myself wondering why he was moving around in the kitchen so fast and how I was going to find the energy to make a sandwich for myself. </div>
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Then I realized it wasn't him who was moving fast, it was me who was moving slow. Within a matter of minutes I had gone from perky and ready to tackle my to do list to total space cadet and barely able to stand. My husband noticed and asked how I was doing and I told him I didn't feel quite right and that I didn't think I could make a sandwich because I was going down hill fast. </div>
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As I was saying that my leg and arm contracted and I began to have a series of big involuntary movements that I call twitching. I guess it's sort of like a tick or a spasm. It doesn't hurt at all and I'm so thankful for that, but when it happens it sort of feels like my brain partially shuts down. I get slow both physically and mentally, I become very weak, my speech slows, I have a hard time standing, and I become extremely exhausted.</div>
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Lucky, my husband was right there and he knows just what to do to help me get through these random blips. He put me on his back and gave me a piggy back ride to the bedroom where he set me up with my laptop, water, and made my sandwich for me. He gave me a few words of encouragement and then let me rest for a while. </div>
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About an hour later I had to get up to go to the little girls room. I was slow and jerky in my movements, but I made it there. I tried to go from the bathroom to the kitchen to get some water with lemon to help with detox ( I think these episodes come on most often when I'm toxic and I had just upped my dose of Bab-1 and Bb-1), but I couldn't walk that far. I took a few steps and tried to talk to my husband, but it was too much for my brain and I had to lay down on the floor to rest.</div>
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This video is of my trying to get up off of the floor and walk by myself just a few minutes ago. You'll see that I need to use a chair to get myself up off of the floor and that the effort of trying to take just a few steps is making things worse and finally I just get so exhausted that I fall back to the floor to rest and continue twitching. Sorry it's sideways, I can't figure out how to rotate a video. If anyone knows I'd love to learn how.</div>
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I wanted to share it with all of you so you could see what this
twitching I keep referring to looks like. I also wanted to share it
because <b>May is Lyme Disease Awareness Month</b> and I one of the messages I
want people to hear about Lyme is that it is serious, it can effect your
life in really big ways if you don't get god treatment right away. The
symptoms are different for everyone and this just happens to be one of
mine. </div>
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I'm happy that this is something that only happens occasionally, that it doesn't hurt, that I'm not having seizures or dying, that it is happening less often, with less severity and with shorter duration (it used to last for weeks or months, not just days or a week at a time). I'm also glad that I'm learning how to deal with it to minimize it as much as possible, and that my husband is here and knows just what I need when this happens (I couldn't get through this without him), but it sure makes life unpredictable.</div>
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I'll likely spend the majority of the day resting in bed or on the couch because it gets better when I sit or lay down and worse when I try to get up and move. I'll have to reevaluate my to do list for today and postpone most of the items until this passes. The hardest part is that I have no idea how long this will last. It could be just most of today or I could be like this for a week.</div>
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I've come to terms with this limitation as best as I can. Sometimes I get really disappointed about not being able to be up and doing things, but I try not to linger in that feeling. Mostly, I just try to avoid situations that seem to trigger it and give in to the resting when my body demands it. Sometimes though, I wish other people were a little more understanding of how this effects my ability to do things. It's hard for me to plan things far in advance or commit to things that would demand a lot of time and energy (like getting a job or traveling) because I never know how am I going to feel and what my body is going to let me do at any given moment.</div>
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Have any of you experienced something similar to these movements? What caused them? What did you do about it? How did it effect you? Leave me a comment and tell me your stories, I'd love to hear them. </div>
<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com2tag:blogger.com,1999:blog-6040518476911492929.post-86259470394095405942012-03-25T16:03:00.000-07:002012-03-25T16:19:43.807-07:00It's been a long while since I last posted.<br />
<br />
I apologize to those of you who follow along and have been wondering what is going on.<br />
Let me begin by saying that I'm fine. No need to worry.<br />
<br />
When I ask myself why I haven't written anything, the thing that comes to mind most often is that I'm just so very sick of being sick. I've been avoiding writing about my experiences as a way of detaching from everything going on. I'm guessing some of you can relate to needing some space from it all and trying to live a "normal" life.<br />
<br />
In the fall we moved. We found out that our house had a mold problem and that I was being affected by it. When we moved I tossed out a huge stash of empty pill bottles that I had been saving as evidence of what the last few years have been like. I decided to toss them out because I wanted the move to be a fresh start and I didn't wan to bring my illness with me. Out of curiosity, I counted the empty bottles and discovered that I had saved 170 of them!<br />
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I think that avoiding my blog was similar to throwing out my pill bottles, it was one more way to try to separate myself from actually being a sick person.
As time has passed, I've felt bad for leaving some of you hanging, for not being there as support for others, and I felt like I should post something to at least say please don't worry, I'm doing alright.<br />
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In addition, I discovered that I'm starting to miss some of my blog friends. Although I've never met most of you, we sure know a lot of intimate details about each other. The support we give and get is unlike any other. Thanks for being my blogging friends.<br />
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A lot has happened in the last several months and I want to catch you up to were I am now. I think the quickest and easiest way for me to do that is a bullet list so here goes.<br />
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<ul>
<li>We moved into a newer, cleaner, warmer, bigger, and mostly likely mold free (if that's even possible) condo and we LOVE it!</li>
<li>I'm having more better days that are better then ever and my bad days usually aren't quite as bad or as often when compared to last spring when the dystonia first kicked in </li>
<li>I have a new LLMD who does <a href="http://lymenaide.wordpress.com/2009/09/17/muscle-testing/" target="_blank">ART (autonomic response testing) or muscle testing</a> and is helping me make progress. The bonus is that his office is only a block and a half from the new house!</li>
<li>I have a new chiropractor and no longer have to travel to SF for any doctor visits HOORAY!</li>
<li>The new chiro also does <a href="http://www.scwellbeing.com/Chiro_.html" target="_blank">craniosacral</a>, <a href="http://puttinglymebehindyou.wordpress.com/2012/02/04/treating-lyme-disease-with-frequency-specific-microcurrent/" target="_blank">frequency specific microcurrent</a>, nutrition consults, and is a shaman so I'm getting a lot of support from her as well</li>
<li>I finally got approved for SSDI!!!!!!!!!!!!! Best news ever!</li>
<li>Along with that I now have Medicare</li>
<li>I was able to get my student loans forgiven because of my disability (currently in probation so nothing is final there, but at least I don't have to pay anything right now)</li>
<li>I'm exercising a little bit every now and then. A walk around the block, or a few bicep curls every now and then is all I can do without going into a tail spin, but hey, it's better then nothing</li>
<li>I'm taking fewer pills and more tinctures and have a smaller protocol overall</li>
<li>My test results are slowing improving</li>
</ul>
In general, I'm still having a fair amount of really funky days, but I'm headed in the right direction and making progress even if it seems like it's happening on a geologic time frame.<br />
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Please feel free to leave comments and ask questions. I'd be happy to talk about any of this, especially if will help you understand what my life is like or support you in your process of moving closer to health.<br />
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Love, health and happiness to all of you! <br />
<ul>
</ul>Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com2tag:blogger.com,1999:blog-6040518476911492929.post-61666341732300291582011-09-11T11:14:00.000-07:002011-09-11T11:15:36.819-07:00Gluten Free BriocheI've decided recently that I want to be cooking more. I'm trying to use it as a productive creative outlet. It's also a great way to take care of myself and save a little money.<br />
<br />
The other day I ventured into the realm of making my own bread. I finally got sick of paying $5-6 a gluten free loaf at the store and was convinced that I could make it myself. I was right!<br />
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Thanks to the incredible cookbook <a href="http://www.amazon.com/000-Gluten-Free-Recipes/dp/0470067802">1,000 Gluten Free Recipes by Carol Fenster</a> I was successful with my first attempt. Thank you Roberta for gifting me this great book, I use it all the time!<br />
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<a href="http://en.wikipedia.org/wiki/Brioche">Brioche</a> is a french bread typically made of flour, eggs, and yeast. It's started in a cool oven and still bakes quickly.<br />
This recipe makes 2 medium sized loaves. Enjoy and let me know how it turns out for you.<br />
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<u><b><span class="Apple-style-span" style="font-size: large;"><br /></span></b></u><br />
<u><b><span class="Apple-style-span" style="font-size: large;">Ingredients</span></b></u><span class="Apple-style-span" style="font-size: large;">:</span><br />
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2 T active dry yeast<br />
1 C warm milk (I used rice)<br />
2 C Carol's Sorghum Blend (See directions below)<br />
1 C Potato starch<br />
2 T sugar<br />
2 tsp xanthan gum<br />
1 tsp guar gum<br />
3 eggs, room temperature<br />
1 tsp salt (I used redland's real salt)<br />
1/4 C (1/2 stick) unsalted butter or buttery spread (I used earth balance)<br />
2 tsp fresh lemon juice or cider vinegar ( I used apple cider vinegar)<br />
1 large egg, beaten for egg wash (optional, but I did it)<br />
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<b><span class="Apple-style-span" style="font-size: large;">** Notes: </span></b><br />
<br />
I had to go to several stores to find all of the ingredients. I ended up with several bags of <a href="http://www.bobsredmill.com/gluten-free/">Bob's Red Mill </a>products and some baggies from the bulk section.<br />
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The recipe calls for using a <a href="http://www.kitchen-universe.com/Chicago-Metallic-Commercial-II-Nonstick-Bread-Pan-p/59610.htm?click=8">french bread pan</a>. I spent two days looking at every lace in town trying to find one. When I finally found the one and only, it was $22! I decided to bake the bread on a cookie sheet instead and it seemed to work just fine. If you want a more authentic shape and better cooking try Target for a good priced french bread pan.<br />
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Last note, it's important to have all of your ingredients be room temp so place them all on the counter, take a shower, and then come back to start your baking.<br />
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<b><span class="Apple-style-span" style="font-size: large;">Directions:</span></b><br />
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1. Make a batch of Carol's Sorghum Blend. This can be used in place of all purpose flour in many recipes. It is used a lot in this cook book so I often make double batches.<br />
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1 1/2 C sorghum flour<br />
1 1/2 C potato/corn starch<br />
1 C tapioca flour<br />
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Sift together and store in a tightly sealed container. Can be chilled or frozen, but bring to room temp before using.<br />
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2. In a small bowl, combine yeast and warm milk. Set aside to foam for 5 minutes.<br />
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3. Generously grease a French bread pan or line with parchment paper. I used earth balance on a cookie sheet.<br />
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4. Sift together sorghum blend, potato starch, sugar, xanthan gum, and guar gum and set aside. My wrists don't like me to sift that much flower so I put them in a bowl and whited them with a small fine whisk to break up the lumps.<br />
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5. In the bowl of a stand mixer beat eggs on high for 1 minute. Add salt, butter, lemon juice, and yeast-milk mixture. Beat on low speed to blend. <br />
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6. Add flour mixture and beat on high speed to blend until dough thickens slightly, stirring down sides with spatula. Dough will be soft and sticky. <br />
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7. Divide dough into two parts and transfer to baking pans. Use wet silicone spatula to gently shape the loaves being careful to create even width and height.<br />
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8. Brush with egg wash and make 3 diagonal slashes into each loaf. I food the egg wash wanted to run off onto the pan so I poured the excess off before putting it into the over.<br />
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9. Place on middle rack in cold over. Set over to 450 degrees and bake 30-35 minutes or until nicely browned.<br />
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10. Remove from pan and cool on wire rack.<br />
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<span class="Apple-style-span" style="font-size: large;">Results:</span><br />
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This bread looks like artisan bread, has a bit of a crust, and nice fluffy texture inside. It is a little bland for my preference, but it sure is nice to have hot out of the oven bread that I can eat without feeling bad later. I may play around with using some more whole grain flours like teff, brown rice, almond, or oatmeal to try to create a more rustic hearty bread. I tend to be a fan of the multigrain seeded breads so this was a bit simple for me, but it was a great place to start. I think it will make great toast, croutons, and french toast.<br />
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Bon Appetit!<br />
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<br />Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-17021273741926670502011-05-11T10:10:00.000-07:002011-05-18T18:42:26.723-07:0024 Hours with Lyme and Dystonia<span style="font-style: italic;">A 24 hour log of day in my life with Dystonia and Lyme Disease.<br /><br /></span>I know people don't always want to hear what is going on for me halth wise. The truth is I don't always want to talk about it either. I get sick of hearig myself talk about it and tired of telling the same stories over and over. It's treing. Even so I feel that it's important for me to share unedited what goes on with my body and in my mind. If I don't tell it exactly like it is how can I ever expect people to understand or believe me.<br /><br />And I do feel like some people don't believe me. I think some people think I'm exaggerating, that maybe I'm lazy, unmotivated, or trying to use my husband for some reason, or that I simply just don't want to go to work. These things are upsetting. Why on Earth would I choose to go from being super fit , active, outdoorsy, adventerous, outgoing, and having my first teaching job to faking an illness for years, sitting around the house alone doing almost nothing compared to before. It blows my mind when I get the feeling that people think it's not really that big of deal. Believe me I did not want to be this way. I would trade it in for a full time job, a social life, and the ability to ride my bike again, and have babies any day.<br /><br />Part of the reason I think that people get this perspective is because I don't share <span style="font-style: italic;">everything</span> that goes on in my body or mind with everyone. I have made what I think is an accurate assumption that people don't want to hear it all. So I wait for moments when people seem truely interested to give full disclosuer.<br /><br />Another reason I think people don't "get it" is because people usually only see me when I'm having a good or at least better day. Every day , every week, is different for me. I often don't know how I'm going to feel from one day to the next and I stay home unless I'm felling pretty good for me. Or I visit with people who understand and don't expect me to feel and look good.<br /><br />So if you only see me on days when I don't look sick, that's because I don't go out when I don't feel well. I sometimes don't have it in me to be social, or even get in the car to go somewhere. Other times I don't go when I'm feeling funky because it's ovbious when I don't feel good and I don't want to divert the fun getting together energy to talking about me being sick, again. I try to think of how my presence will effect the group and sometimes I just don't go so everyoe else can have more fun without the sick girl.<br /><br />Anyway, this has been on my mind a lot lately as I'm feeling a bit misunderstood. I can see how and why that happens, but I also wish it didn't happen with so many people. So...I decided to write a log of what a random day is like for me. I've included as much as I could about what happens with my body and my mind. Maybe this will help people to "see" me.<br /><br />Part of what can't be seen is the neurological issues I'm having. I deceide to leave this unedited so you can see how my brain is causing me to ytpe. I just can't seem to get my fingers to dowhat I want them to.<br /><br />This is a 24 hour log of May 11, 2011<span style="font-style: italic;"><br /></span><br />9:00am<br /><br /><ul><li>woke up in pain, used bathroom knowing that once I got up I wasn't going to be able to go back to sleep</li><li>took meds</li><li>tried to start dishes, but only got as far as soaking some in a dishpan of water before I needed to sit down<br /></li><li>checked email for messgaes from Dr. and to see if anyone signed up for helping me - nothing and sad about it - I had to cancel a dr apt because I can't get myself there and don't have a large enough community of supprt to be able to find a ride everytime I need one<br /></li><li>sat in office chair in pain and frustrated that the computer is slow and not working right</li><li>Dr. called to reschedule apt that I canceled today because I couldn't find a ride, but I didn't answer the phone because I'm too tired to talk and I don't know when to reschedule because I don't have a way to get there<br /></li><li>mated the socks in the sock basket that have been sitting around for a week+ then had to rest</li><li>sat on floor to sort laundry because standing and bending caused too much pain in my back<br /></li><li>had to pull myself up off the floor using the dresser, act of lifting basket of laundry exhausting</li><li>while putting laundry into washer my head started shaking and moving uncontrollably<br /></li></ul>10:15<br /><br /><ul><li>hungry and ready for breakfast, but still recovering from the laundry, lay down on couch for a bit feeling overwhelmed and lonely, wondering why some people still don't believe that this is really happening to me</li><li>even though I'm resting I feel like the insides of my body are shaking and moving and then my hea d doe sstart moving</li><li>knees burning and feel swollen</li><li>feeling naseaus so force eat breakfast of banana and GF toaster waffels baceuse I'm ttoo tired to make anything else remember 3 times that I need to take pills before I am able to remember long enough to go get them</li><li>talk on phone with Dr about paperwork I need from him<br /></li><li>muscles across chest and shouldershurt and are tight from twitching</li><li>put on more clothes because I'm having a hard time staying warm- wearing gloves in the house</li></ul>11:00<br /><br /><ul><li>spent 20 minutes on the computer checking facebook and such before my brain got too tired to focus</li><li>walked into living room and noticed I was short of breath and my heart was pounding checked my heart rrate apx. 100BPM no wonder I'm tired!</li></ul>11:30<br /><br /><ul><li>went back to bed and read book for about 15 minutes then fell asleep in the pajamas I wore last night + socks, slippers, a robe and gloves and was just warm enough<br /></li></ul>1:30<br /><br /><ul><li>woken by sound of mail being delivered</li><li>groggy, light headed, wobbly walking, and lower back pain in my spine</li><li>replied to emails - forgot password and clicked wrong buttons several times<br /></li></ul>2:00<br /><ul><li>made phone calls to Dr. offices<br /></li></ul>2:25<br /><ul><li>made a sandwich for lunch - it took me 15 minutes to make a turey sandwich</li><li>Jaw popping and face hurting from contorting in to weird shapes<br /></li><li>feeling light headed and slow<br /></li></ul>2:40<br /><ul><li>finally got in the shower dor the day</li><li>was standing in shower for at least 5 minutes before I realized I hadn't washed anything</li><li>opened new bar of soap and smell was upsetting so I didn't use it</li></ul>3:00<br /><ul><li>shower made me so tired and worn out I went straigt to the couch and laid down in a towel for at least 40 miuntes with my eyes closed</li><li>tried to hold a cup of water, but it was too heavy<br /></li></ul>4:00<br /><ul><li>got up to get dressed and didn't have the strength to stand up had to get dressed laying down</li><li>open window made me cold and I started twitching again</li><li>mini melt down - worried that this twitching might never stop, feeling lonely, and like a burden on my community, especially my husband - wondering how long he's going to be able to handle this situation<br /></li></ul>4:45<br /><ul><li>got up to pee and get snack, having hard time standing up straight, walking, and talking (I can think, but the words just don't want to come out)<br /></li><li>took about 5 minutes to get a snack from the kitchen</li><li>contacted possible new Dr. who is local<br /></li></ul>5:00<br /><ul><li>updated lotsa helping hands website with new dr apts.</li><li>saton couch reclining and eating snacks</li><li>finally put clothes into dryer</li><li>made paking list for my stay over at my in-laws ( I need to get out of our house long enough to see if i feel better when I'm not in a moldy house and give my husband a break from taking care of me, he's tired) Had to make list or I will for sure foget something<br /></li></ul><div>6:00</div><div><ul><li>random paper work and computer stuff</li></ul><div>7:00</div></div><div><ul><li>Make dinner - frozen trkey burgers and fresh veggies, had to sit sown and have my husband finish the last part</li><li>Having a hard time getting words to come out my mouth and hsaking a lot</li></ul><div>7:45</div></div><div><ul><li>Start packing the million things I'll need for staying away from home for a few days, it takes almost an hour with help to do this - leaving thie house is not something I can don on a whim, I ave to thinkabout food, water, meds, and my clothing everyth time I leave<br /></li></ul><div>8:40</div></div><div><ul><li>While trying to walk across the street, I'm simply to fatigued and my knees too weak so I just sit down in the road and wait till I get some stregth back and try again, but have a really ahrd tome with it and sit down again until my husbadn can hlep me get across the street - I feel ike an old lady<br /></li></ul><div>9:30 </div><div><ul><li>At my in-laws wondeful home and really tired from unpacking the car and setteling in</li><li>having a snack and then get ready for bed, but will probably read until my hands hurt too much</li></ul>10:30<br /><ul><li>ended up checking email, blogger, etsy, and facebook and seeing comments which lead me to watch James Durbin videos on you tube</li></ul>11:30pm<br /><ul><li>finally got ready for bed and did read for about 15 minutes until my arm hurt from holding the book</li></ul><br />8:00am<br /><ul><li>woke up with my arms, shoulders, and chest in pain</li><li>tried desperatly for an hour to get comfortable and go back to sleep, but i couldn't get all my limbs supported properly to be comfortable enough</li></ul>9:00<br /><ul><li>finally just decided to get out of bed</li><li>take meds</li><li>sit on front porch in sunshine talking with father-in law, twitching and watching tiny yellow finches fly around</li><li>will likely take a nap as I don't feel like I'm completly done sleeping</li></ul><br />Even though yesterday was both hard physically and emotionally, I'm doing alright. I try to find humore and joy in what I'm doing and make the best of the situation. I'll be resting out at the ranch house for a few days sitting in the sun, watching the garden grow and playing with the kitties. Oh yeah and they have cable!<br /><br />As always I welcome your questions and comments. Hope you are well.<br /><br /></div></div><div><br /></div>Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com12tag:blogger.com,1999:blog-6040518476911492929.post-86530458809588698502011-05-10T11:25:00.000-07:002011-05-10T13:01:45.328-07:00She was shakin'!<span style="font-style: italic;">I've developed a new symptom: twitching and shaking. It's called <a href="http://www.dystonia-foundation.org/pages/what_is_dystonia_/26.php"><span style="font-weight: bold;">Dystonia</span></a>. This blog post is the full story of what happened. Warning, this is a long blog post, but I really wanted to share this experience with all of you.</span><br /><br />On April 19th I was tagging along with two of my girlfriends who had appointments with their Dr. in Los Altos. I was riding in the back of the car and I wasn't feeling so well. I went inside to sit in the waiting room with them and people kept asking me if I was feeling alright. I finally realized that I wasn't. Their Dr. looked at me with concerned eyes and offered me a place to lay down and some oxygen which I gladly accepted. When I got up to walk I was weak and a bit wobbly. After a few minutes on the oxygen I started twitching. Really it was more like full body writhing and convulsing.<br /><br />My friends were concerned and they got their Dr to take a look at me. I knew something wasn't right. In fact I knew something was really wrong and I've only felt that way once before. I knew I wasn't okay. He let me lay there for about 30 minutes and I wasn't getting any better. My friends called my Dr. and let him know what was happening. Meanwhile their Dr did a basic exam, gave me an adjustment of one of my ribs that was hurting, and sent me to go see my Dr. in Redwood city. Every time I sat up the writhing got worse. I didn't have full control over my speech, my heart was pounding, I was hot and cold, and I felt like I was going to pass out. <br /><br />My friend pulled the car up to the front of the building, but I couldn't stand to walk. I could barely keep my eyes open. Their Dr. had to pick me up and carry me out to the car. My wonderful friend zoomed up the freeway to my Dr. in Redwood City. He came out to the car where I was twitching and shaking. I tried to walk with one of them on each side of me, but my legs wouldn't support me. So, my Dr picked me up and carried me until someone else met us with a chair.<br /><br />My Dr. ( Dr. G) hooked me up to an IV of sodium chloride and let me rest in a reclining chair for a long time. I started realizing that the more I stayed flat on my back the better I felt and that when I sat or stood up I'd start shaking again and my speech would get weak. After a while the shaking calmed down, but I was still really weak and tired so he switched me to a dextrose IV to try to perk me up. After almost 4 hours of IV I started feeling a little better then when I arrived and I knew my friends needed to get out of there so we headed back home.<br /><br />I sat reclined in the car on the way home and was able to be still for a while. Then when we arrived home I walked from the car to the house and I started twitching again. I was so fatigued that I just laid on the floor for a bit to rest.<br /><br />The next day my husband took me to the urgent care. Let me tell you if you ever want to be seen immediately and get 6 nurses in your room at once just tell them you're convulsing or having something that looks like seizures and they'll rush to help you. It was all a bit overwhelming. I got another IV, some med to try to stop the shaking, basic lab work, and a CT of my brain. Once they determined that I wasn't dying, they sent me home saying it should pass. WHAT!?<br /><br />After waking up again to awful shaking and barely being able to get around our tiny house my husband decided to take me to the ER at Dominican. I saw several nurses, a Dr, and a neurologist. He did a basic exam and even though I could barely walk and was convulsing, he said I had a "normal neurological exam" that he'd "seen this before" and that "it should pass on it's own." WTF! I wanted to punch him in the face. This is not normal by any means! They didn't even try to figure out what was happening to me. One day I'm feeling great and the next I can barely walk or talk and that's considered normal?<br /><br />Meanwhile, my wonderful Dr. was calling and checking in with us and brainstorming ideas about what to do now. We started calling for info. on getting seen at Stanford, UCSF, and with any other Lyme literate professional we could think of. Finally the DR. who's office this started in called us to check in and suggested I see a DR. A, a Lyme literate neurologist/chiropractor in SF.<br /><br />We made an apt with him and I'm so glad we did. After a very through 3.5 hour evaluation we discovered that my brain isn't working correctly. I couldn't smell out of one side of my nose, my muscles are weak, some are barely even working, I can't feel movement in all of my toes and fingers, etc. He said that I have a condition called <a href="http://www.dystonia-foundation.org/pages/what_is_dystonia_/26.php">Dystonia</a>. It means that the part of my brain that controls movement isn't telling my body to stop moving so I'm moving involuntarily. The right side of my brain is especially effected which is causing the left side to be weak and malfunction, and the two sides of my brain aren't communicating well.<br /><br />This condition can be caused by a number of things. In my case we're thinking that something caused a hole in the blood brain barrier and things are getting into my brain and causing it to misfire. I'm told that it could leave as quickly as it came on or it could stay for a long while. There is no "cure" for it, but there is a lot that can be done to protect the body, support it, and encourage the right parts to start working properly again.<br /><br />In addition to all of this he showed me on my X-rays where my spine has pulled to the right, my neck doesn't curve, a disc is wearing, and I have <a href="http://en.wikipedia.org/wiki/Spina_bifida">spina bifida</a>. WHO KNEW!?! I didn't. But it turns out one of my vertebra isn't fused together properly.<br /><br />In essence I'm a hot mess right now. I'm trying to stay positive and do as much as I can. I visit with friends, sit outside and have even gone out for dinner. Some days are good and some are super funky. Some days I can do a lot and some I can't. What I have figure out is that I need to rest a lot, talking (esp on the phone) makes it worse as do too much stimulation, loud noises, or lots of moving around.<br /><br />I've been having to ask for help a lot lately. Help with errands, driving, shopping, cleaning, etc. I just can't do what I was able to do just a few weeks ago. Lots of people have offered their help and many have been super helpful and supportive. Thank you!!<br /><br />To make things easier for me I've created a website via <a href="http://www.lotsahelpinghands.com/">Lotsa Helping Hands</a>. I can enter in requests for help and those who want to can sign up to help out when it works for them. If you're interested in being on my support team please check out my website and sign up to be part of my team <a href="https://www.lotsahelpinghands.com/c/641005/">Keri's Helping Hands</a>. <-- Just click those words to visit my site.<br /><br />Thanks to everyone who has stepped up to make sure I'm okay, especially my husband who has really risen to this new challenge. I couldn't do this without all of you. Thanks so much!<br /><br />I'm really tired now. I think I'll go lay down.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com0tag:blogger.com,1999:blog-6040518476911492929.post-21146942713309772832011-05-10T10:19:00.000-07:002011-05-10T11:01:07.060-07:00Visiting with the Naturopath - Part 2More on my experiences with naturopaths and biofeedback.<br /><br />Since my first visit with the naturopath in nor-cal I have recommended her to several friends. When you know there's something not right happening with your body and your regular doctors can't or won't figure it out or you need a lot of answers at an affordable price, <a href="http://www.naturedoc1.com/pages/brief.html">biofeedback</a> is a handy tool. One of my good friends had many <a href="http://www.canlyme.com/patsymptoms.html">familiar symptoms</a>, her husband had been ill off and on for years and they'd both seen tons of drs. They had biofeedback and found out that they also had <a href="http://www.lymedisease.org/lyme101/lyme_disease/lyme_disease.html"></a><a href="http://www.lymedisease.org/lyme101/lyme_disease/lyme_disease.html">Lyme Disease</a>, <a href="http://www.lymedisease.org/lyme101/coinfections/coinfection.html">co-infections</a>, parasites, food sensitivities and the assortment of fun goodies that come with being world travelers and having Lyme. They're both on a path towards recovery.<br /><br />More recently I went with a friend to visit this naturopath. My friend had mysterious digestive issues, fatigue, memory loss and a few other symptoms. It turned out that she has parasites from a sandy beach in Costa-Rica along with "<a href="http://www.myadrenalfatigue.com/adrenal-fatigue-101">total adrenal melt down</a>", and a bunch of major food allergies. She was given a list of foods to avoid that was longer then mine, and was advised to do some further lab work and take many supplements to help kill the parasites and support digestion and adrenals. She had dramatic improvements in the first week of changing her diet and taking the herbs and such. It's so nice to see your friends start to feel better.<br /><br />After that visit we both went home and told out husbands about it. They both agreed to see her and I made an apt for myself as well. The three of us went and got a bunch more valuable information. Her husband found out that he keeps getting pneumonia because some of the bacteria is hanging out in his gut. My husband found out that he has Lyme and co-infections. DANG IT! Dang it. DANG IT!!!!<br /><br />I however, got really good news!!! My levels of infection for Lyme and friends are very low, lower then they've ever been. She said that what ever I'm doing is working and to keep up the good work because I'm almost there. Hooray!!!!!!!!! I so needed some good news. It was nice to know that the infection was getting better. But I was curious as to why I'm still so tired and worn down. She said that detoxing takes a lot of energy, my immune system hasn't rebounded yet, and I'm still dealing with adrenal fatigue, and parasites. Okay, so I've still got some work to do, but it isn't all Lyme and that's great!<br /><br />I was really bummed about my husband though. I'm bummed that he has it, that I probably gave it to him, that he has to go through the hell of treatment, and that we have to delay trying to have a baby until we're <span style="font-style: italic;">both</span> free of Lyme. Not that I want to have a baby with the way I'm feeling and how weak I still am, but the thought that it could be happening some day soonish was really nice. He's going to start rotating through some of the leftover herbs and anti-microbials that I have left over. I'm hoping that his immune system is much stronger then mine and that he'll stay mostly symptom free and will get better really quickly once he starts attacking it.<br /><br />So, if you want details on who this wonderful naturopath is, just contact me. I'd be happy to share. I really believe that she can help people with a wide variety of health issues. Remember the first time I saw her I was simply complaining about feeling a little tired and some pain.Kerihttp://www.blogger.com/profile/18021950641743459714noreply@blogger.com2