Thursday, March 20, 2014

New Protocol for Treating Fluoroquinolone Toxicity, MTHFR, and Gut Issues

I just got back from a visit with the Dr. in Santa Cruz.  It sure is a long drive from Chico, but well worth it.  He muscles tests my protocol for me to insure that I can tolerate everything I take and it's going to be effective.  Erik and I have also been muscle testing ourselves at home and it is making a big difference because we can mirco tune our protocols in the weeks between visits.  This was the first time that I went in for a visit and had almost nothing removed from my protocol.  I think this is because I am testing at home and triple checking during my ND appointments using a Zyto.

The following my current protocol.  Please keep in mind that this is designed specifically for me to address my specific needs at this exact moment.  I do not think that there is any one protocol out there that will work for a large section of the population.  Everyone needs one created just for them.  Given that, I share mine here because I get asked often and because it might give you some ideas of things to ask your practitioner about.

Happy Healing!

1- Dr. Ohhirra's Probiotic
1- Cytoyme-AD
1- Ortho Molecular Products Ortho Biotic

1- Nordic Naturals - Omega -3
2- Pure Encapsulations Evening Primrose Oil EPO
1- Nordic Naturals Children's DHA
1- Pure Encapsulations B-Complex Plus
1- Pure Encapsulations B-Complex w/PQQ
1- Designs For Life Vitamin D Supreme w/ K1 & K2
2- Daily Algazim
1- Organic India Ashwagandha
4- Health Force Nutritionals Vitamineral Green
1 Every other day- Source Naturals SAMe
1- Paradise Resveratrol
1/4 tsp. - Pure Synergy Pure Radiance C
1 drop- Beyond Balance Parazomin

1/4 tsp. - Pure Synergy Pure Radiance C
2 droppers- Professional Complementary Health Formulas Adrenal Drops
1 tsp.- Jernigaan Nutraceuticals Neuro-Antitox II Basic in Apple Cider Vinegar

2- Thorne Research Meriva-500
1- Beyond Balance Tox-Ease 
1- Beyond Balance  Cyflacalm
1- NutnCology NAC
1- Paradise Resveratrol
1- Allergy Research Group DIM (2 if needed during pms)
2- Health Force Liver Rescue 5+
1 drop- Beyond Balance Parazomin
2 pellets under tongue 6 days a week- Kali Phos (the big ones)
10-12 pellets under tongue once a week- Kali Phos  (the little ones)

1 Scoop Every Other Day - Xymogen OptoCleanse GHI Creamy Chocolate

1 tablespoon papaya seeds (read my previous post with how-to info.)

Recommended: Incan Goldenberries as a super food snack

REGULAR DETOX: lemon water, rebounding, light exercise (walk around block), dry skin brushing, FIR sauna, epsom salt and peroxide baths, nasal rinses, water enemas

I love receiving questions and comments and will do my best to respond to each of them.

Sunday, March 9, 2014

The Top 6 Things That Helped Me Recover from Lyme Disease (and Flouroquinolone Toxicity)

I recently gave a talk to my local Lyme support group entitled The Top 6 Things That Helped Me Heal.  I am by no means totally well.  In fact, I often feel just as junky as I did a year or two years ago (more on this soon), but my good days are getting better and my test results are slowly improving.  I've copied and pasted my notes from my talk into this blog post in the hopes that it might provide you with some useful tools or information on your healing journey.

** Side note:  I have recently uncovered the possibility that the symptoms I am left with are not from the Lyme and co., but rather from adverse side effects from taking fluoroquinolone drugs early in my treatment.  In fact, I was functioning fairly well until I took those drugs and I have never felt well since then.  The more I learn about fluoroquinolone toxicity the more I realize that most of the symptoms I'm left with are connected to that, but also that my protocol was already addressing it because I am using zyto and muscle testing to find out exactly what is happening in my body and what my body needs.  I have joined a support group for people with side effects from these drugs and I've discovered that these steps I took for Lyme are very similar to the steps that need to be taken to recover from the drug toxicity.  The only real difference is that there aren't tick born infections to deal with, but other then that the approach to diet, detox, food, clean living, and generally healing the entire person are beneficial in both situations.  

The Top 6 Things That Helped Me Heal From Lyme Disease (and are helping with fluoroquinolone toxicity as well)

1.    Find practitioners that do “alternative” types of testing and treatment

·      Energetic testing such as muscle testing, biofeedback, or zyto can provide you with information about imbalances, infections, sensitivities, allergies, and help determine which treatment options to pursue.

·       Here are some informational links on muscle testing or ART (autonomic response testing)

You might be able to find an LLMD, holistic doctor, functional medicine Dr., acupuncturist, Chinese herbalist, or chiropractor who knows how to do this type of testing.  After you work for a long while with a trained professional you might consider learning how to test yourself and your loves ones.

Here is some info on Zyto testing which has many variants and similar other kinds of testing.  It requires working with a doctor who has the technology and knows what to do with the information gathered with this really powerful type of tool.

·             ZYTO info.

2.    Live in a clean/healthy environment

·      Move out of moldy homes, get rid of mold contaminated items, eliminate all sources of mold in home, work, car, etc.
·      Switch to all natural products for cleaning, bathing, beauty, etc. - no fragrances
     (I even avoid going into places that are highly fragranced, walk around the cleaning isle in the grocery store and the cosmetic counters in department stores, avoid nail salons and beauty stores, etc.)
·      Reduce EMF exposure as much as possible
·      Clear out clutter and have an organized, tidy, pleasing home
·      Reduce stress as much possible, surround yourself with positive people
·      Clear up unresolved emotional issues

3.    Find out about your food allergies and sensitivities

·      You can quickly test for hundreds of foods sensitivities with ZYTO, muscle testing will also help. 
·      Use skin prick, blood work or any methods to gather a complete list of foods to avoid.
·      Listen to your body and avoid foods that cause any type of reactions.  Food sensitivities cause inflammation through out the body resulting in pain, fatigue, brain fog, congestion, bloating, gas, and poor digestion.
·      Eliminating all foods that you are sensitive to will reduce the burden on your digestive system and give it a chance to recover and repair itself.  Each person needs a diet that is tailored to their specific needs.
·      Remember, aprox. 75% of our immune system is in our digestive systems.  Most Lyme or Flox patients have leaky gut and candida, avoiding the foods your body can not tolerate will help your gut heal getting you ready to effectively treat your infections and imbalances.

4.    Genetic Testing

·      Many people who have chronic health conditions, who are very sensitive, or who are stuck in their treatment have genetic issues.
·      These issues can cause major roadblocks in specific detox pathways.
·      Most genetic issues require very specific vitamins, minerals, and foods to be consumed or avoided.
·      The information can also help you avoid things that will cause symptoms, make you worse, or slow your rate of progress.

Genetic Testing resources:
 ZYTO can uncover some of the mutations and sensitivities can point you in the direction of others
·      Test recommended by Amy Yasko – Nutrigenomic Testing  $495 (not covered by insurance) Focuses on Methylation cycle in relation to autism, is one of the most thorough for detox issues,     comes with a compete report and tons of information
   23andMe $99 (not covered by insurance)
 Similar to Yasko’s, but only provides raw data that needs to be converted into useable information,     does not cover all the SNPs in Yasko’s test
 Genova Diagnostics Detoxigenomic Profile $495 (might be covered by some insurance)
  Focuses on detox issues for people with environmental, chemical, and medication sensitivities
   MTHFR only testing – can be done through your DR. or ordered via $149 (covered if ordered by your Dr.)
·      Testing for other SNP’s as needed based on your specific symptoms or health conditions

5.    Detox
·      Many of the symptoms we associate with Lyme and Flox are actually caused by toxins.  Those of us with genetic mutations have an increased need for detox support. 

Methods of detox:
·      Foods for detox: cruciferous veggies (broccoli, kale, boc choy, cabbage, brussel sprouts, etc.), lemon, beets, artichoke, garlic, avocado, berries, etc.
  Supplements: (remember to get these tested by your practitoners)
                        Heel Detox Kit:
                        Pekana’s Detox Kit -Apo-Hepat, Itires, Renelix
                        Tox- Ease – I used GL because it is gentler for sensitive people
                        List with more ideas for detox:

·      Detox baths – I like Epsom and peroxide.  Other people use borax, baking soda, cornstarch, etc.
·      Enemas – I use filtered water, other people rave about the benefits of coffee
·      Alka Seltzer Gold – helps alkalize the body

6.    Treating for other issues

·      Through using ZYTO and muscle testing I was able to identify many other issues that were stressing my body as much or more then the Lyme itself.  Treating these first will allow your immune system to start to recover and you’ll have a better chance of getting rid of the TBIs. 
·      I treated for parasites, lung worm, MarCons, candida, dental, structural isues, mold, etc.

I love getting questions and comments so please feel free to leave one and I'll do my best to get back to you quickly.

Thursday, June 13, 2013

Video update of symptoms

For the last two years I have been experiencing bizarre neurological episodes that cause involuntary movements.  I refer to it as being twitchy because I don't know what else to call it.  I haven't met anyone else with this same set of symptoms and it's really hard to describe so I thought I'd make a little video.  I did this so that others can see what I mean when I say I'm twitchy, but also with the hopes that maybe someone watching will know someone else with similar symptoms or even better, that someone will know the cause of this.  I'm really looking forward to understanding this and working on treating it because when it's not happening I usually feel really good.

Please feel free to share this blog post.  As usual questions, comments, and words of encouragement are always welcome.    

Tuesday, April 30, 2013

Curing Lyme Disease

A lot has happened in the last few months and most of it has been really good.

Here's a recap.

Last summer I did a round of bicillin injections and then the Lyme Disease was "gone" for 4 appointments.  Weekly shots in the booty were no fun at all, but I sure made a lot of improvements.  Then, in the fall, I went in for biofeedback testing and was informed that I was one life cycle away from being rid of the Lyme spirochetes.  I was told that I didn't have any adult bacteria only unhatched ones and once they hatched they would die before they had time to reproduce because I was already on the right stuff to kill them.  I was to expect them to hatch in 4-6 weeks and sure enough in October I had symptoms of Lyme return and it showed up in my muscle testing as barely being there.  We tweaked my protocol, I started new protocols for MTHFR, detoxing better, and my symptoms improved again.

About a month ago, I went in for biofeedback testing and we couldn't find the lyme or any tick born infections.  Last night, I went back to visit my wonderful doctor in Santa Cruz and here is
what we found.

This is on a scale from 1-5 then 0.
Remember that 1= really bad problem  3= active and needs work 5= barely detectable 0= not present
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.

Test                    12/11      1/12       4/12          5/12      7/5     7/31    9/12    9/27   10/24  4/13

Lyme                   4                4            2               1            0       0          0       0        4       0

Babesia               3                2            2                3           5       3           0       0       0       0

Bartonella           3                2            2                3            0      3           0       0       0      0

Parasites             0                1            5                0            0       3           3       4       0      0

Viruses               4                3            3                4            4                    4       5       4       3

Mycoplasma      4                4            4                4            5       5           4       4       0       0

Yeast/mold/fungi  3             3            4                4            3       3           3       4       0      4

Bacteria             3                2            3                4            2       2            4                0      3

Neurotoxins       4               4                              4            3       2            3       3       3      4

Metals                4               4                               4           3                     3

Emotions                                                                                                                    4

So I asked him " Can I say that I officially don't have Lyme?"  He said" you can officially say that we aren't able to find any evidence of you having Lyme."  HOOOORAY!  I literally did a happy dance in his office! I DON"T HAVE LYME ANY MORE!!!!!!!!!!!!!!!!!!!!!!!!!!!!  Wahoooooooo.

I can not even begin to describe how ecstatic I am about this.  I have been working so hard and waiting so long to hear that I have finally beaten down and successfully destroyed the Lyme.

So how am I feeling?  I'm feeling like I'm still on a gradual up hill climb.  I've made a lot of progress in the last 6 months, but I'm still cleaning up the mess it's made.  When I finally get my adrenals, hormones, energy, and and gut all balanced and my detox working properly I think I'll feel better then I have in a really really long time.   

So if you are tired, in pain, suffering, and wondering if it will ever end know that it will.  It does get better and you can beat the Lyme and get your life back.  Stick with your diets, your protocol, rest up, detox, find a great doctor and do whatever you have to to take care of yourself.  Nothing is more valuable then your health.  Keep on keepin on lymie friends.  You can do this.

Monday, February 25, 2013

10 Funny Little Ways I Know I'm Getting Better

Most of you know that I've been dealing with health issues, specifically Lyme Disease for several years now.  One of the questions people ask is "Are you better yet?"  I also hear a lot of "When will you be done with all of this?"  It's hard to answer these questions because every case of Lyme is different, each treatment plan is tailored to the patient, and there is no way of knowing when it will all be over.  But, there are clues along the way that provide hints to improvement.  Test results and symptom relief are two indicators that I am doing better.  But there are also some some funny little ways that I know I'm getting better.  Here is my list of 10 silly clues that my health is headed in the right direction.

  1. I can stand up in the shower.   I no longer wish I had one of those plastic chairs designed for elderly or disabled people to sit on in the shower.  At one point taking a shower was so hard I sometimes didn't take one.  Other times I'd take a bath instead.  There were also times that I'd find myself daydreaming about a detachable shower head and a shower stool so I could just sit down in the shower.  I don't want those things anymore and that's a sign of improvement.
  2. I can wear shoes with heels! I've always enjoyed a great pair of heels, a tall pair of boots, and can easily find a reason that I really need a new  pair of shoes.  There was a time however that just looking at a pair of heels was painful.  I wore flats and slippers almost exclusively for probably a good year or so.  Recently, I discovered that I can wear heels again, without pain, and you know I'm taking every opportunity I can to rock my new boots and I'm looking forward to wearing wedges as soon as it warms up a little.
  3. My t-shirts are getting tight.  A while ago I lost a bunch of weight and a lot of it was muscle.  I was so scrawny that I hardly recognized myself.  Just the other day I realized that several of my favorite shirts were feeling tight around the arms and that's when I realized I have gained back some of the weight and a good part of it is muscle.  I actually have biceps and shoulders again! 
  4. I can survive a trip to the grocery store.  In the last few weeks I've been able to plan a menu, go grocery shopping, put groceries away, and cook all in the same day!  That may not seem like an impressive feat, but there was a period when I would rush through the produce section because the cool air would make me start twitching and before I made it 1/3 of the way through the health food market, I'd be standing in the middle of an isle with a blank stare on my face, not really sure what I was shopping for.  I'm glad to be done with that.  Neurological episodes and twitching in public was not my favorite thing.  I still need help pushing a cart full of groceries, but I'm no longer seriously considering using one of those electric chairs with a basket attached. 
  5. My toenails are prettier.  Maybe that seems like a weird thing to say, but for a while even my toenails looked sick.  There were rough and bumpy and not so pretty, but now they've started growing in much smoother and healthier looking.  That's evidence to me that the environment in my body is healthier.  Yay for pretty toes.
  6. I can dance!!!!  I got pretty excited when I found a groupon for drop in salsa lessons.  I love to dance, but I haven't had the strength or endurance to do it in a while.  Since I have been feeling pretty good lately I thought I'd give it a try and I was surprised how well I did.  I was able to survive a 50 minute class without a massive recovery time afterwards.  Luckily, beginning classes like these have a lot of stopping and starting so I never get too tired.  I'm hoping I can go again soon.   
  7. I can pick up a gallon of milk.  Just the other day I was out grocery shopping with my roommate and I picked up a gallon of milk and carried it in from the car.  I was so happy when I discovered that it didn't even seem heavy to me.  Not that long ago I had to buy a smaller Clean Canteen because my 32 oz size was too heavy for me to lift to my mouth, and now I'm lifting gallons of milk no problem.  Maybe that's how I'm getting muscles in my arms again.
  8. I can exercise.  It's a reasonable assumption that if I was having a hard time showering and drinking water that I wasn't really doing much in the way of exercising.  Before Lyme I was really active and it's been hard for me to learn how to be so sedentary and still.  I've been happy to discover that I can occasionally exercise again.  I've been rebounding, stretching/yoga, walking, lifting little pink 2 pound weights, doing crunches and squats, dancing, I even went indoor rock climbing!  My endurance is still low and my recovery time is LONG, but I am able to occasionally get out and move around and I'm loving it!
  9. I got behind the wheel.  Driving is one of the hardest things for me even still.  It requires a lot of mental energy, focus, rapid decision making, memory, attention to details, sensory input, etc.  For the most part, I still rely on others to do most of the the driving, but if I'm having a good day I can sometimes drive myself a short distance and it sure is nice to have a little bit of independence every now and then.
  10. My zest for life is returning.  This is a big one.  Simply having enough energy and brain power to even feel excited and desire to go out and do stuff is fantastic.  I'm excited for myself and I'm looking forward to trying more and more activities that I haven't done in years.  Just feeling desire, motivation, and excitement swell up inside of me is so thrilling.  I'm really glad that after all I've been through these last few years it hasn't dulled my spirit and that underneath all of the symptoms and feeling funky I'm still me inside.  
So, those are my top ten funny little ways that I know I'm getting better.  What clues do you have that you are headed in the right direction?

Questions, comments, and encouragement are always welcome.

Monday, October 29, 2012

On paper I'm pretty healthy.

I've seen my Lyme Literate Doctor twice since I last posted.  I've been having to see him more regularly because my Lyme Disease symptoms have been so up and down lately, especially the neurological symptoms like involuntary movements and the total brain melt that comes with it.

I have been saying for a while now that when I don't have to deal with the chronic fatigue, mental slowing, and physical limitations of my neurological symptoms I am feeling pretty good.  It seems like maybe my good days are getting better, but there is no real improvement in the bad ones.  In fact they seems to be happening more often.  Getting the results of my muscle testing really helps me to be able to wrap my head around my ever changing symptoms and make sense of what is going on inside of my body.  Here are my most recent results.

This is on a scale from 1-5 then 0.
Remember that 1= really bad problem  3= active and needs work 5= barely detectable 0= not present
In other words, the higher the number the healthier I am, but the ultimate goal is all zeros.

Test                    Dec '11      1/12       4/12          5/12      7/5     7/31    9/12    9/27   10/24

Lyme                   4                 4            2               1            0       0          0       0        4 

Babesia               3                 2            2                3           5       3           0       0       0

Bartonella           3                 2            2                3            0      3           0       0       0

Parasites             0                 1            5                0            0       3           3       4       0      

Viruses               4                 3            3                4            4                    4       5       4

Mycoplasma      4                 4            4                4            5       5           4       4       0

Yeast/mold/fungi  3              3            4                4            3       3           3       4       0

Bacteria             3                 2            3                4            2       2            4                0

Neurotoxins       4                4                              4            3       2            3       3       3

Metals                4                4                               4           3                     3

Emotions                                                                                                                     4

I'm looking REALLY good on paper!  I got so many zeros (zero = not present) this time that my Dr. wasn't sure he wanted to believe the results.  Some how since my last apt a month ago I was able to clear myself of parasites, mycoplasma, mold/yeast, and unfriendly bacteria as well as keep the Babesia and Bartonella away!  I've never had so many zeros before.  It's almost too good to be true.  I think that's how the Dr. was feeling too, sort of a let's not get too excited just yet.  We'll see how it all looks at the next apt and if it's similar then we can get really excited.  This could have been a fluke.  Muscle testing is not 100% accurate, but not many tests for the things I have are.

We also received results for some blood work I had done and that returned great as well.  We did a CD-57 (this measures basic immune functioning) and I got a score of 61 which is an improvement over my last score of 33. The goal is 100 for a few months.  My complete metabolic panel was all normal.  My thyroid is functioning properly.  My cholesterol levels were low and he said I have the best healthy to non healthy ratio he's ever seen on paper for a real patient.  We also tested my homosysteine levels.  These would be high if I was having a hard time detoxing.  They weren't high.  So either I'm not having detox issues or the heaps of supplements I'm taking for detox are doing their job.  Sort of seems like I should have stopped my supplements before doing this test to find out what's really going on.

This was all great news.  The only bummer parts were that I'm still muscle testing for a moderate level of neuro toxins, my level of viruses is up (I think I picked up a tummy bug a few weeks ago), and the fracking Lyme has returned at a level 4.  Level four means that it is present and active but not a huge infection.  BUMMER!  I was really hoping to get another zero for Lyme at this appointment so that I could finally say that I was Lyme free.  This new information does however explain why some of my symptoms like night sweats and headaches have returned.  It also lines up with what the naturopath said which was that at the time she tested me with biofeedback I didn't have any adult lyme bacteria in me, but that I did have eggs waiting to hatch.  I have had some stress in my life recently and I think that the stress gave the lyme a better environment in which to hatch and so they came out to play.  It also could have just been that they were ready.  Who really ever knows with these things?  It could also be that the antibiotic injections I got in the spring/summer sent them into hiding.  They made have just made biofilms to hide in and now that the pressure has been off for a while they've come out of hiding.  That doesn't feel as right to me, but it's possible I suppose.

I'm glad to discover that my more minor symptoms have a cause I can understand and I'm hoping that I can kill these new Lyme bacteria before they get too comfortable and reproduce again.  I got rid of it once before I can do it again.  Now if we could only figure out why it is that I'm getting better on paper, but not so much in real life that would be great.  I keep saying this and I'm starting to get pretty frustrated with not being able to find a cause or reliable treatment for the neurological stuff.  It's by far my worst symptom, the most frequent, and the most debilitating and we just can't seem to figure it out.  Hopefully soon we'll get a clue to help unravel this mystery.

Friday, September 21, 2012

Treating Parasites With Papaya Seeds

My Lyme Literate Medical Dr or LLMD turned me on to an easy and affordable way to treat parasites with papaya seeds.  I've had good success with it and I get a lot of questions about it.  In this blog post I'll share some info about the use of papaya seeds for treating parasites, describe how my doctor recommended I use the seeds and offer up some sources for more information.  Please remember that this is just information, I am not a doctor, and that you should always check with your physician before starting any new treatment. 

The seeds from papaya fruit have anti-helminthic and anti-amoebic properties, which means they can kill intestinal worms and other parasites in our digestive system.  Studies are showing that children in Nigeria who are treated with papaya seeds are 75% clear from the buggers after just 7 days of treatment.  Papaya seeds are a successful method of treating intestinal parasites with little to no side effects at an affordable price.  My LLMD says that this is so easy, affordable, safe, and effective that everyone should do this 1-2 times a year as part of a wellness program.

There are lots of ways papaya seeds can be ingested.  They can be snacked on, used in cooking, blended into smoothies, and ground into powder.  Here is how I prefer to take mine. 

  1. Buy a non-gmo papaya
  2. scoop out the seeds 
  3. rinse the seeds and remove any bits of fruit
  4. spread onto a cookie sheet that has been covered with paper towels
  5. Let dry in a warm place for as many days as necessary.  I have a window box that is perfect for this part of the process.
  6. Measure out 1Tablespoon of seeds and grind them in a spice grinder
  7. Carefully put the powder into gel caps. I have a 1/8 teaspoon that helps with this step.  I usually get about 15 caps, but it depends on the size you use and how full you pack them.
  8. On an empty stomach right before bed I take all of the pills I filled at once.
  9. Repeat again on the full moon.
Here are some websites with more info on how to use papaya seeds to treat parasites and some recipes for smoothies.  Just an FYI the seeds taste like black pepper.  It's totally okay to just eat them or put them int your food, but keep in mind they are quite peppery.  That's why I use the gel caps, I don't really care to taste them.
Info and smoothie recipe:

Info on the standard honey and papaya seed method:

Dr. Oz segment on parasite treatment:


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