Catch up

It's been a while since I've posted. About a month I think, no wait it's been 2 months! Aah, how did that happen? There's been a lot going on for me. I'll just summarize it and then hopefully return to more regular postings.

In general I've been feeling worse these days. My symptoms are getting worse and I feel like I'm back to where I was a year ago. My knees are burning, I'm stiff, and my arms are weak/numb/tingly/painful, esp. when I'm sleeping. I'm not sleeping as well because my arms hurt so bad and that's affecting me during the day.

I had my last few apts with my LLMD before she moved to the east coast. I tested really high for mercury and lead and she put me on a med called DMSA to detox them out of my system. She thinks they were clogging my liver and kidneys causing me to get really sick when I took antibiotics because there was too much to cleanse out. DMSA is nasty and I was supposed to take a whole buck of other nasty things along with it, but didn't do a very good job of that. I don't feel any better since taking four rounds of that med. In fact I think I feel worse.

I also had an ulcer in my esophagus near the center of my rib cage. I had to have a scope put down and a biopsy done. It came back negative for the usual suspects. I think it was like a canker sore, just in my throat. I think this because I got a couple really bad ones in my mouth after drinking a bunch of almond chocolate milk with the whey powder I was supposed to take along with the DMSA. Pretty certain I'm allergic to almonds. They make my mouth hurt every time I eat them. It eventually healed and I learned to eat a wide assortment of really smooshy foods that I normally don't care for.

My CD-57 test results that measure the health of my immune system came back at 22!!! That's a bit scary given that it's my lowest score ever. A score in the teens is a red alert and a single digit score causes the DR. to tell you to start making plans cause you might not come out of it. 22 was a shock. I thought I'd still be hovering around in the 50's. I was wrong. At least it verified how I'm feeling. So we decided to put me back on the antibiotics again at least until I saw a new dr who would make a new plan for me. I took them for about 10 days and I had severe diarrhea the whole time. I got so dehydrated, skinny, sick, and weak. I was barely getting dressed and showered every day. In fact I don't think I was. I drank a ton of water, protein shakes, ate well, doubled my probiotics, etc. and nothing helped so she pulled me off of them thinking that we've caused a major imbalance in my digestive system with all the meds I've been on. That and the DMSA as well as the Vit. C in large doses adds to the symptoms as well. Oh well, I thought it was time, but I guess I'll have to wait a bit longer until I'm done with all these other meds before I can get back on antibiotics.

Also my LLMD said that she found it weird that I'm doing so many of the right things besides antibiotics that I shouldn't be getting worse this fast. She said with all the cat's claw, salt/C, artimisin, oil of oregano, etc. that I should at least be stable. She suspected that I have a something a little different from Lyme Disease. Something called Borellia Hermsii which is still a tick born illness, but a different species of tick and bacteria which gets a different diagnosis and treatment plan. She sent me to get tested for it saying that everyone she sends comes back positive. I came back negative. Hum.

She's gone now and she recommended that I go and see a new Dr. in Carmel. He's from the east coast and has recently moved here. He's an Infectious Disease Dr. and I've heard that he's really good at figuring out exactly what is going on. I hear that he takes insurance and is willing to treat chronic Lyme. That's incredible given the political climate right now surrounding Lyme. I've also heard that he is pretty old school, and most often prescribes 42 days straight of IV antibiotics in his office. Some of the other local lymies are going to see him for diagnosis and investigation of their illnesses, but are skeptical of his methods for treatment given that most of the success stories are from people who mix a wide variety of methods both modern and traditional as well as new age. Cover all your bases and hit it from every angle possible. I think that's the way to go as well.

Well, I have an apt with him on the 11th of Oct. and I'm really curious what he's going to test me for and what diagnosis and treatment he'll suggest. I'll let you all know what happens.

For now, I'm trying something called a RIFE machine to kill off some of the buggers. A Rife machine is a simple low voltage electrical device that can be tuned to specific frequencies. The idea is that you tune it to frequencies that will disrupt and kill the bacteria. The only side effect is the herx reaction that occurs after a big die off and lasts until your body can detox all of the dead bacteria and their toxins. It was invented to cure people of cancer and it worked. Lost of people all over the world have cured a waide variety of things with it. I'm borrowing it from a friend who says that she, her brother, and her mom all cured themselves of Lyme with it. And from what I can tell she had it worse then me. She said that she used the Rife, a supplement called beta glucan ( helps immune sytems to produce more fighter cells, T- cells), a good clean diet, and a good detox program. She said she got really sick and then gradually got better and has been great since. Rife is listed as one of the top 10 treatments for Lyme, I've always wanted to try it, and there are several people in the Lyme support group who use it. So for now, that's what I'm doing along with the beta glucan and being stricter with my diet again. I hope it works!

I guess that was a bit more then a summary :-)


For more information of the use of Rife Machines for Lyme check otu these links:

http://www.lymediseaseresource.com/How_Rife_Machine_Works.html



http://www.lymebook.com/lyme-frequencies-preview#_Toc92354707

http://www.newmediaexplorer.org/chris/2005/03/31/lyme_disease_rife_machines.htm